51 and still kickin'

[Guest guest]

Patty,

Yes, we are the same age. I'm sorry to hear you're having

such a rough go at it. Guess I have just grown up and lived

with it so long - also raising my daughters on my own after my

wife died gave me way less time to dwell on CMT. I have Type X

and both girls (twins) have it too, but are asymptomatic to this

day. They're very protective of dear old Dad and while they have

their own apartment,(they're 20 and in college) are often dropping in

to bring me dinner or to chat or just to tell me how their day went

and ask how I am.

I work full time still, and hope to for quite awhile yet. I do

some swimming and am at the gym about 3-4 days a week. When the

weather is decent (which it is not today!) friends and I, or my

girls too, will slap a volleyball around on the beach for fun.

My daughters still think I don't eat right (I eat fine - but they

are both vegetarian) so they come over with some new tofu or soy

concoction that I am doomed to eat. So far nothing has been too bad

but I like to eat my chicken, lamb, fish, rice, vegetables, etc...OK

and with a small wedge of cheesecake once in awhile:-)

We all take Vitamin E and the girls are pushing me to try to add more

potassium in my life. My doctor says I am doing well, so I mean, how

many bananas do I have to eat? lol Really, my girls and I are so

close; they were 10 when their Mom died, so I was Dad and Mr. Mom and

I guess I am still both, or maybe they are becoming more 'motherly'

towards me. Heck, I am 51, not 81 I say - I am blessed - they tell me

so often how much they love me...can't beat that!

P.S. Once in awhile the girls post here. There names are Hannah and

Hayley.

[Guest guest]

Hi , thanks for responding. Our daughters are a bit younger 11 & 12, but

are very active. They are adopted, so I know that they are

not affected. I guess I need to get use to the strange feelings

in my arms and tiredness in my legs. I have AFOs and I do walk

better. What are your daughters majoring in at college? There

is a shortage of speech-language pathologists. I am always talking

to young students about this great field.

Patti