teens with CMT

[Guest guest]

Tyler, Reema, and others:

My pre-teen and middle school years were hard - it seems like once I

had the muscle biopsy, all I lived for was summer camp and horses.

But that kept me going. At 15, I started to learn to drive. Changed

my attitude completely, because I felt I was becoming an adult. Once

I turned 16, got my license and also got my first job. I felt on top

of the world! I was going to a new high school then, which I loved

and had lots of friends. Started dating then, went to all our school

dances and other events. At 17, as a senior, things got better, I was

almost finished with school requirements and could work more hours. A

steady beau and more parties and dances and neat stuff kept me busy.

I was also doing volunteer work then too.

Exempt from PE, I got a jump on homework in study halls or the

library. While my grades weren't A's, the work I did was good enough

to allow me to enter college as a sophomore.

I talked to my neurologist about CMT and asked for what I thought I

needed, together with my parents. Potassium and Ritalin gave me alot

of good high school years. I never once thought CMT sucked or that I

couldn't do things...I just kept going with a good attitude and being

positive.

If I can find out where my book is, I'll let you know - I'd be happy

to send it to you if you want - no charge...it will be electronic.

Give me a few days to get caught up on things and go through it.

Hang in there! Life is beautiful~ Gretchen