Guest guest Posted April 17, 2004 Report Share Posted April 17, 2004 I am taking 8000-10,000MG a day which is a LOT of Vit C considering that I don't weigh very much. I'm taking 1000MG tablets, 2-3 of them 3 times per day with meals. (I wonder if a different form of Vit C or ascorbic acid would be more beneficial??) Tuesday will be the 2 week mark and I'm not sure if I can detect any changes, however, I'm still recovering from my broken and sprained foot that is healing very slowly. I wasn't able to walk for a month and a half and am trying to regain some strength from that. In the two weeks that I have been walking again I have had a number of falls and consequently sprained my other foot. :-( But, it's good to be up on my own two feet again, even if I am weaker than I was before. I should say that genetic testing for me came back negative and the doctors don't know what type of CMT I have and are not sure if it's affecting the myelin or the axon but they 'think' it may be the axon that is damaged. If that's the case, I don't think the Vit C will benefit my nerves. Hasn't the testing shown it to be effective only with myelin damage? Now that the snow is FINALLY gone here in Northern MI I'm hoping to be able to get outside more and have been looking at adult tricycles to be able to bike ride again. My balance is too poor for 2 wheels and I'm wondering if any of you have one of these trikes or have seen them. I have seen them equipped with either electric or gas assisted motors and I'm thinking that might be nice to allow me to go further and have some back up power if I get too exhausted. ~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2004 Report Share Posted April 19, 2004 : I have also told that I have type 2 CMT because of the Nerve conduction studies that have been done. I don't know about the Vit. C benefit either but have an appointment with an alternative medicine physician to check out my levels of Vit. C in my system and see if it works on type 2--nothing lost to try. I have seen the three wheeled trikes but the cost was a little too much for the amount that I would use it so I opted to use a stationary bike for riding as I can no longer ride a regular bike either. Do you use any assistive device (cane, walker) to assist with your balance? I am currently using a cane and it truly helps especially at night. Good luck with your strength building. Sharon Quote Link to comment Share on other sites More sharing options...
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