Guest guest Posted June 2, 2004 Report Share Posted June 2, 2004 Lynn, What was your first symptom? What made your doctor search for it? Are you like me, probably had it a lot longer, but wasn't told so. I would be interested to talk more to you, Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2004 Report Share Posted June 3, 2004 Janet, The numbness in parts of my legs and feet never came back after my back fusion. My feet continued to hurt and I was treated as though I was having a Ankylosing Spondylitis flair up. Finally after looking at the swelling of my foot etc my rhuemotologist xrayed by foot and said it just " wasn't normal " and sent me to the neurologist suspecting that there was more to the puzzle. What started in the right foot is not on the left, and now my hands are starting to become affected. I go back to the neurologist next week to discuss trying to tell me just what kind of CMT I might have. Until I found this group I thought it was all the same. Amazing what I am learning. I hope this helped. Lynn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2004 Report Share Posted June 3, 2004 , Thanks for your comments. Yea after alot of research and this group I couldn't deny it anymore. I go to MDA June 10,hopefully I will get more answers to what type I have too. I was dx with it this year, but I know I must have had it back when in the 70's was told I had some form of muscular dystrophy. thanks again for your comments,Hugs Janet Quote Link to comment Share on other sites More sharing options...
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