Guest guest Posted June 2, 2004 Report Share Posted June 2, 2004 D.L., Ask your new doc to do the DNA blood test for CMT on you. (It is painless) Friedrich's Ataxia now mimics CMT, so perhaps your new doc would test you for that too. Have you been to a foot/ankle orthopedist and an certified orthotist? You said your orthotics didn't help. How much of a try did you give them? On the EMG, the results would be definite indicators of CMT, depending what they are. Did you have the blood test for Rheumatoid Arthritis? I don't understand why you needed a 3rd EMG. As for shaking, in CMT, some people, like myself, have tremors. These can be suppressed with medication. Ask your doctor. Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2005 Report Share Posted February 4, 2005 Shaking is just one of those things I have learned to live with. I don't waste it during the day it is a good time to dust my house. :-) At night I breathe though the shakes of after shakes. Deep breathing is useful to me for pain and my tremors. Cathleen in Arkansas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2005 Report Share Posted February 4, 2005 le, I have been thinking about your question all day and remembering when I was overly tired at night with tremor surges, that it would take me a long time to fall asleep. To occupy my mind into relaxation, I would start counting backwards from 100 and take deep breaths. At some point, I would relax and fall asleep, only to wake up immediately and start the process again - then off to sleep for good. Looking back on it I feel this was part of the " normal " relaxation/sleep cycle for me - it's just that the tremors took longer for me to manage - that was before medications and much more relaxation/meditation. (then it took me 2 hours to fall asleep) I don't feel anything was wrong, that is just how it was playing out for me at night. If I had to go through that again, though, I wouldn't and I'd be asking my doctor for help. As for the stomach, can't offer much help with that. Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2005 Report Share Posted February 4, 2005 Thank You, Gretchen!!! le Quote Link to comment Share on other sites More sharing options...
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