red skin/burning sensation

[Guest guest]

Ok, I've got a quick question for the group. Tuesday I will be going

to my neurologist to ask a expert*sarcastic laugh*. But I've noticed

before I have any joint pain, or swelling in my hands or ankle that

my skin turns bright red and I experience a buring sensation similar

to the feeling of a chemical burn, and yes, I've actual excperiences

that too, and that was not fun. My mother thinks it's the

neuropathic pain, and father who has cmt too is still in denial

about me having it so asking him is like asking a brick wall. So I

was just wondering does that happen to anyone else?

Like I said Tuesday I'll ask my doctor, but I'd like to know if this

is something simi normal or something I should worry about?

Because some how its kinda freaky. But I always know know when my

joints are acting up.

I've got to go, my daughter has decided to get into something she

shouldn't have.

[Guest guest]

Hi :

I too experience a burning sensation, especially on the top of my foot. The

neurologist I have indicated the burning sensation was a symptom related to

my CMT.

I was already taking Neurontin (Gabapentin). He put me on 25mg of

Amitriptyline to take at bedtime along with the 400 mg of Neurontin I was

taking at bedtime.

This works for me, but I suggest it may not work for everyone.

I think I have a very good neurologist who knows CMT very well. He is a very

" learned " man. Quite often I send him information on different research

programs and their results. He truly loves getting this from me.

I thank Gretchen for this. Gretchen keeps all of us, who belong to the

family, updated on the latest CMT research information and much more.

Good luck seeing your doctor.

Regards,

Beckingham

Corporate Nice Guy

[Guest guest]

,

I too have the burning sensation in my lower legs. I am going to my neuro on the

10th to ask. We can compare answers.

Lynn

[Guest guest]

Hi ,

My neurologist said what yours did and up my neurontin dosage. I'm a

little put out with him though. I brought up other issues and he

pushed the away. He said the neurontin will help with my pain, and my

depression. Yeah, neurotin the magic cure all. I'm a little upset,

but what do I know, he's the one who went to medical school. Not me.