Guest guest Posted June 1, 2004 Report Share Posted June 1, 2004 My name is . Most of my friends call me Val. I am 24 years old and was recently dx with cmt. What type I do not know as my neurologist isn't very aware of the disease. I live in central Florida. I'm experiencing many different problems with cmt. Mostly it has been nerve pain, numbness and balance. I'm struggling to live with cmt, because my doctors aren't very aware so proper care in my area is difficult. I was on neurontin 900 mg but finally gave it up when the dizzy spells became more than I could handle. I stopped taking the meds when I thought I couldn't carry my three year of daughter because I was afraid to fall while she is in my arms. Right now I'm suffering serve depression, not as a result of the cmt, but is related I'm sure. My friends and family do not know how to handle it. Most of my peers do not speak to me any longer, and my best friend can only joke about it. When my mom heard the dx all she could do was cry. It's not easy, right now, but it's a day to day. And right now it's all I can do. Anyways I've got to give my daughter a breathing treatment. And finish getting ready for work. Val Quote Link to comment Share on other sites More sharing options...
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