Re: cavus feet

[Guest guest]

Hi Elaine, I also walk on the sides of my feet.. it is becoming very painful,

especially with calouses developing on the sides. I have AFOs but rarely

wear them, because of walking on the outside of my feet they push against the

AFOscausing more pain. Also, my high arches hurt when I walk a long

distance in them. I have a terrible time finding nice shoes. Barefoot has

been the most comfortable. I did find these little things called levelers and

they have helped. I put them in the heel of the shoe and it helps my heels

level out so that my feet dont twist as much when I walk. I would also like to

know if anyone out there has had any kind of surgery to help this.. thanks,

Carol

[Guest guest]

Hi Elaine, The cavus foot is something I had surgery for. 2 of my children

have cavus. My other one has flat feet. CMT is soo different even in the same

family.

[Guest guest]

Elaine,

Do you mean 'pes cavus' in describing your daughter's feet? This is what

I have. My feet are short (size 6), small toes and high arches. As I get

older my feet have widened. Ii had orthopedic surgery as a child to

correct the 'roll' - I rolled my left foot out and rolled the right foot

in - to the left also. This was corrected with tendon surgery, it was in

no way cosmetic. I am my nature a toe walker - toes hit the ground

first, then heel; but thanks to custom made orthotics, this is corrected

into heel first then toe when I walk giving me better balance and

posture. The orthotics fit snuggly up into my arches, under my heels and

toes. My toes also flatten a bit in them.

~ Gretchen

[Guest guest]

I have the classic pes cavus feet, they look just like the ones in MDA

brochures. I have

not had any surgery, I wear AFOs at work and SAS shoes around town. I went a

long

time without any support and have the calluses to prove it- from walking on the

outside of my feet. My endurance has seemed to improve with AFOs and I can spend

more time on my feet without feeling run down and sore. I'd always joke that " my

dogs are barkin' " , after a long day. I have had doctors suggest surgery only

for my

hammer toes, but the recovery times and the actual proceedure itself are really

intimidating to me. YMMV.

BTW I think that it's fine these days to wear whatever shoes work for you on

your

wedding day (or any other day for that matter). I have a friend that wore

bedroom

slippers at her wedding...

[Guest guest]

i am new to this group, but i have this condition you

speak of. i've had several sugeries by a doctor that

said i did not have cmt Found out last month i do)

.. none of the operations helped and in fact i think

being down caused the muscles to waste away faster. i

wear an afo now. what's all this i see about vitamin

c? do you know?

[Guest guest]

Hi,this is such a great response and sure is good to hear someone else speak of

their cavus feet. My daughter is the one that has feet like that and walks on

the outside of her feet... She has afos but doesn't wear them much... We think

we found her a pair of shoes for her wedding... Thanks again. It is sooooooo

good to talk to others with this. Take care and keep in touch.

Elaine

[Guest guest]

Hi Gretchen,, Yes that is what I meant... My daughters feet she walks on the

outside of them, high arches, small toes, small feet, size 6 and a bone

deformitie in each foot on the side. Three orthopedic surgeons over the years

have told us, to try to have those surgically fixed would be quite a bit of

surgery with no guarantees for straight feet or no pain afterwards.. They said

to leave them alone because thank goodness they do not hurt her. It doesn't

stop her from doing things either just hard to find shoes to fit and that are

comfy.. Thanks Gretchen... This talking to all of you is great.... For years my

family did not have a clue what is was we had or why we walked so funny or had

such weird looking feet... Now we know... Take Care.. Elaine

[Guest guest]

Elaine L,

It is heartening to read about how helpful and supportive you are for your

daughter. I am 57 years old and have had cavus deformity all my life--much

worse now and am considering surgery again. I have two consultation exams

scheduled with 2 of the best surgeons in Kansas City, one of which did not

recommend surgery a few years ago. He recommended lots of stretching and

new orthotics. This strategy worked for several years, but, as you know by

now, this disease is progressive. I have worn braces for the past two

years. As I wrestle with this decision, mostly alone as has become my

unfortunate habit, I am reminded of the importance of talking with people

who are involved in my life. My disease and it's complications are facts of

their lives too. Please be aware, for your daughter and yourself, that

conversations about the problems and triumphs--processing the ups and downs

of dealing with the ever-changing fabric of your lives--are of immeasurable

value. I wish you the best.

Tom

[Guest guest]

Hi Tom,

Thank you very much for the reply. My

daughter is getting married in three weeks and the

young man she is marrying is absolutely supportive in

learning all about CMT. He is a wonderful guy and the

two of them go together soooooooooooooo good.

Yes her feet have never been operated on. Three

orthopedic surgeons advice was to leave them alone.

They do not hurt her which is wonderful, and she knows

they will not help her balance so leave them alone.

And that is what we did. My feet lay flat on the

floor and I don't have any balance on my left foot/leg

especially so I knew what they meant. Please keep up

emailing me, it's great talking to someone like you.

Take care,, Elaine

[Guest guest]

, Hi, Thanks sooooooo much for your reply about cavus

feet... It is soooooooo good to talk to you who knows

what I mean and how my daughter feels about her feet.

My other daughter shows no signs of CMT at all...

Isn't it something... Thanks again, and the wedding is

May 22nd. I can't wait. it is sooooooooo exciting...

Thanks again... Elaine