Re: Todd MacCullogh remains upbeat

[Guest guest]

I feel bad for this man. It seems as if he's still in denial and hasn't done

much researching on CMT yet. As far as I know the symptoms don't go away.

Thanks for the update Gretchen.

[Guest guest]

Has anyone told him that CMT can't be cured with surgery?

[Guest guest]

GREAT IDEA!!!!!!!

[Guest guest]

Hi again:

I decided to write an email to Mr. Friesen and his article. The

Sun is one of our local papers in Manitoba.

I mentioned that CMT is NOT!! a rare disorder, and has many more

symptoms than mentioned, very serious symptoms, and many forms of

CMT.

I invited him to read some websites on CMT and to pass them on to

his media friends.

I will let readers know if I receive a response.

Take care

[Guest guest]

, now this is a great idea! Great for 'correct' awareness too. I

hope you get a response. ~ Gretchen

cmt_forum wrote:

> Hi again:

> I decided to write an email to Mr. Friesen and his article. The

> Sun is one of our local papers in Manitoba.

> I mentioned that CMT is NOT!! a rare disorder, and has many more

> symptoms than mentioned, very serious symptoms, and many forms of

> CMT.

[Guest guest]

, yes, I was surprised to read that - but on one hand I was

thinking perhaps he was having one of the tendon surgeries that will

help him walk better and continue to play ball (I am thinking here of my

own tendon surgery that has allowed me to do much) ~ Gretchen

MommyToAdam@... wrote:

> > Has anyone told him that CMT can't be cured with surgery?

[Guest guest]

Hello I am Pam from PA. and I have a family history of CMT

and I am experiencing weekness in my ankles and feet so I

am always looking for information on this horrible disease.

I also want to thank all of you who responded to my Phila

doctor post a little while ago.Anyway, I want to let you

know that the surgury Todd M had was called Tarsel Tunnel

Release and he also has somthing called CIDP which is

related

to or a symptom of guillian barr syndrom.

[Guest guest]

Hello I am Pam from PA. and I have a family history of CMT

and I am experiencing weekness in my ankles and feet so I

am always looking for information on this horrible disease.

I also want to thank all of you who responded to my Phila

doctor post a little while ago.Anyway, I want to let you

know that the surgury Todd M had was called Tarsel Tunnel

Release and he also has somthing called CIPD i think that

ios what he had the surgury for. Hope this helps, Pam