Guest guest Posted April 19, 2004 Report Share Posted April 19, 2004 Welcome Barb, thanks for introducing yourself. I have no inflammation with my CMT. However, ever since I was about 7, my feet have always felt like they were burning (on the bottoms - off and on) I use cold packs and love to walk on the tile also for a cooling effect. I have also used BioFreeze on occassion. Perhaps you might want to research CDIP - Chronic Demyelinating Inflammatory Neuropathy for your question on inflammation. ~ Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2010 Report Share Posted September 16, 2010 Hi Barb, Welcome. Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2011 Report Share Posted February 18, 2011 Mark, Thanks for the info however CHOP is where we have been having so many issues. It took me 2 months to get a return call for an appt and then they canceled it on us the night before. I prefer not to deal with them. Thanks again for the suggestion! Barb Re: Welcome Barb Hi Barb and welcome! I never presume to second-guess our beloved expert Gretchen, but I have a slight correction to make on her doctor recommendation. I have met Dr. Scherer on a number of occasions. I wish I knew him earlier in my journey with CMT. I have to point out that Dr. Scherer only treats adults. There is another CMT Center of Excellence next door at CHoP led by Dr. Finkel. This is the link to his info. http://www.med.upenn.edu/apps/faculty/index.php/g324/p1516 I do not know Dr. Finkel as well, but I have met him. Again, had we met him sooner, we might have sought his help to for our son. Instead, we travel to Detroit each year to see Dr. Mike Shy at the Wayne State University CMT Clinic. His contact info is: http://wsupg.med.wayne.edu/view.php?id=P0JF0SG2RL We live in NJ and make that trip to Detroit each summer. It is by far worth the trip, but the Philadelphia docs are top notch as well! We are always here for you! Mark, 48, CMT1A, NJ > > Hi Barb, > > A very warm welcome to you and your daughter. As for the pains, has anyone mentioned a medication? I hope we can be of help to you and your daughter here at . Many Moms and Dad's to offer their experience, plus those of us who grew up with CMT from childhood. > > As for a CMT Dr. try this one - he knows his stuff > http://www.med.upenn.edu/apps/faculty/index.php/g324/p11842 > > Gretchen > So. Calif. > Diagnosis at age 10 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2011 Report Share Posted February 18, 2011 Hello Barb.., Welcome....I'm also new in here....You and your daugther has found the right place....:-) Marika, Denmark, 40 yrs, undergroup to CMT 1B > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2011 Report Share Posted February 18, 2011 Welcome Barb! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2011 Report Share Posted February 18, 2011 Hi Barb, I cannot recall how old you said your daughter was, but I have personally seen Dr. Scherer politely turn down seeing a youth and refer them to Dr. Finkel. Dr. Finkel does have CMT Clinic days, I can look into that further. They are by appointment and are specific days. Perhaps if you reached out specifically to him and explained your issues you might get better results. Both are awesome, but Dr. Scherer really does stick to adults. Also, neither of the Philadelphia clinics are " free " clinics, so if insurance does not cover it, you will be billed. The Wayne State Clinic is covered by CMTA and MDA grants, so they do not bill you for anything your insurance does not cover. Just another thought to share if this helps you in a decision to go to WSU. They too are months out in appointments because they do the clinic one day a week. Mark Quote Link to comment Share on other sites More sharing options...
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