Re: family history/research centers

[Guest guest]

,

I am very curious about the research centers. My future husband has CMT. His

CMT is definately genetic related since his father has it. He has scheduled an

appointment with the MDA clinic in middle of July. From what I have gathered

only and his father are the only ones alive that have it, unless others

have a lesser form of CMT. I would love to see research done on both of them. I

am particularly interested in knowing how his CMT will effect the rest of his

life and how CMT will effect us when we plan on having children.

Who would he need to contact for possible testing of his family, the MDA clinic?

Thank you very much for your time and patience.....

Big Hugs,

[Guest guest]

,

I thought about that. My Dad, his Mom, & his brothers went to 's Hopkins in

the 70s & were tested (positive of course). I'm sure the tests are different

now though. It seems to ask my Dad & Uncles to be a part of more

studies/research/tests - is asking too much. I think they are tired of being

poked at. =) Plus, they are just plain stubborn!

A.

[Guest guest]

KAREN,

WE CERTAINLY CAN'T BLAME THEM FOR NOT WANTING TO BE POKED AND JOLTED, ETC.

AFTER 5 ENG/NCV'S I AM GETTING A BIT TESTY ABOUT THEM MYSELF.

BLESSINGS TO ALL OF YOUR FAMILY,

ANGELA P.

[Guest guest]

,

Thank you for the post. Blessings to you & yours also! =)

[Guest guest]

,

So sorry to be so long replying to your post re: research into your family.

I have had a few additional health problems turn up which seem to take all

of my time.

Anyway, the CMT research centers or experts in Detroit, Dr. Shy at

Wayne State University, Dr. in Huston Texas, Dr. Scherer in

Phillly come to mind initially.

However, MDA may also be interested as they seem to be doing some research

on the CMT issues also.

Please let me know how you make out.

P.