Guest guest Posted April 15, 2004 Report Share Posted April 15, 2004 The 50/50 odds were just not good enough for me. But I knew that is not the same as incidence rate. My own CMT is a genetic spontanity - I didn't even get it 'passed on'. I chose not to have children of my own because of my CMT. I didn't know what type I had, but I new at a very early age I had it, and how my struggle was. I did not feel I could give such a struggle to my child/children, AND I did not know my body well enough during my childbearing years to fully understand what CMT can do. I do not have any regrets. For more posts on this subject, go back in our archives, this has come up many times before. When my mother was my age now, she just found out her 10 year old daughter had CMT. That was in a world virtually unknown to CMT, certainly, very few doctors, and nothing could be done. No IEPs then, no books on 'how to raise a child with a neuromuscular diseases, no special parking, nothing. I can't even begin to share how much she went through with me, and looking back on my hard years, I want to cry, because she was always there for me, she never cried, she always had a solution. She kept me going. Even in those times I wished I had not been born she strengthened me by reinforcing me how badly she and Dad wanted a child and how long they waited. So here I am, the Moderator of your group. Wierd how things work. ~ Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2004 Report Share Posted April 15, 2004 Bless you Gretchen, you're an inspiration to us all.... Quote Link to comment Share on other sites More sharing options...
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