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managing crowds

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I have never really had any problems with being in crowds, but there have

been several occasions (mostly when I was pregnant) that just going to Walmart I

would have to find somewhere to sit down because I would have sudden attaks of

nausea, cold sweats, dizziness, and even sometimes the 'diarrhea rumble' in

the bottom of my stomach. I am not sure if this was directly connected to CMT

or being pregnant, but that is the closest I have come to being uncomfortable

in a crowded place.

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Good question Gretchen: As for me, crowds, as a rule, don't bother me. It's

dependant on my mood on any particular day. If I'm having a " patch of it "

(thanks for that expression my UK friends), I tend to be irritable around people

who tend to stare at me with my brace and " scooter " or don't give way as I'm

trying to navigate in a crowd. I wish I had a quarter (inflation you know) for

every time I've had to say, " behind you " , while navigating on my electric scoot.

People just stare and don't realize I'm not a side show for their entertainment

and am just doing what they are - trying to get on with what I and they are

doing. It's actually quite funny at times, I must say. Especially at the level

I find myself when behind people on a crowed sidewalk or in a crowed mall. I'll

leave the rest to your imagination. LOL

Being a submariner, I'm quite used to being around people in close quarters for

very long durations. So, on the whole, my answer would have to be no, crowds

don't bother me.

rQn I

PS I just did spell check and ya know I do believe this is the very first time

" it " didn't have to correct one word. I'm truly elated at this moment!

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I also have to join the list of people who " hate " being in a crowd.

It is very easy for me to be pushed off balance and bump into someone

else. This can also look like I am drunk, then I really get looks

from people.

Confined spaces also bother me. The other day I was walking into a

small office and there was a guy sitting in a chair with his legs

sticking out towards the door. He was not doing this intentionally,

it's just the way the chair sets in relation to the door & small

room. When I stopped to position myself to step over his legs, he

tells me " man...I just can't move back any more " . I didn't like this

comment because this person was a State Trooper and made the comment

with a certain authoritative tone talking down to me. OK...now I'm

just ranting, so I'll shut up.

So yes, it is very frustrating for some people with CMT to be in

crowds and/or confined spaces. Personally, I think this is made

worse by the fact that many times people (strangers) don't know that

the person has any disabilities. So when the person with CMT needs

more space, they think the person is trying to be dominating. Or if

the CMT'er is stumbling, some people may assume the CMT'er is drunk.

I have even had people make comments to me such as " if your shoes

hurt your feet, they why did you wear them? " That person was

assuming that the way I walk was caused by my shoes hurting my

feet....what an idiot!

Rob

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Jeanann: I have a " horn " , if you want to call it that, on my " scoot " , however,

when I push the little button it sound that comes out causes everyone to run for

the exits as it sounds like a very loud smoke detector scream.

rQn I

PS I'm still looking for a " diving alarm " to install on my scooter. That

should do the trick

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I dodnt like them at all. I dodnt like enclosed places either..I feel

better if my husband is with me. I try to take my mind off by talking

to someone close to me.

I hope you are not coming with your electric scooter around where I'm

RQn becuase I wouldnt be able to run..I just have to get behind your

scooter and keep going...lol

R..I'm from texas also...may I ask what part of Texas you are

from?

I cannot give any advice on CMT,,I'm learning so much from you

guys..I lived with it for so long that I feel I'm normal and refuse

to learn any more of what is happening to my body until now.

Thank you

Spy

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