Guest guest Posted July 5, 2004 Report Share Posted July 5, 2004 , I know the feeling about getting 'officially' diagnosed. I know that I have CMT and my whole family and friends know I have it, but that doesn't make a difference when it comes to getting government help for it. Being told things like 'I can see there's something going on in there, but how do I know it's CMT?' or 'I see some forms of atrophy, but I don't know if CMT is what is causing it.' can be really discouraging and depressing to someone with CMT who knows that that's what it is. Anyway, just wanted to voice my thoughts. Quote Link to comment Share on other sites More sharing options...
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