welcome Tammy

[Guest guest]

Hi Tammy,

Welcome. You should learn a lot here. I, too, take Fosamax for bone

regrowth. You should see evidence of some improvement with your next

test after a year. Your doctor is right in that CMT probably played

a part in your bone density loss. This is due to the fact that a lot

of CMTers do limited walking, running and jumping and the bones do

not receive enough impact to keep them strong. Many people suffer

bone loss who do not have CMT, also. Many are blissfully unaware

unless they have the test done. There are now elementary schools

that are having the students jump for a short period before leaving

the classroom for recess. The purpose is for maintaining strong

bones.

I am still ambulatory at age 63, although range is limited, when I

was told I would be in a wheelchair by 20 and in heaven by 25. The

doctors were guessing and they guessed wrong! Just keep on keeping

on and know that you are not alone!

Ruth

[Guest guest]

Tammy,

Your email really touched my heart. I, too, have a son that is showing signs of

CMT.

I can handle almost anything, but for my child to have a disorder that

genetically came from me, that's hard. All parents feel some sort of guilt in

this situation.

I'm glad that your family is positive, mine is too. And, when the going gets

tough, the jokes come, and laughing makes everything better.

I wanted you to not feel alone, because, I know how you feel.