Guest guest Posted May 5, 2004 Report Share Posted May 5, 2004 I have been a silent member for quite awhile. Today I opened the info on Hedgehog Protein that Gretchen wrote and it hit me what a great job she does and wish that here was some way I could give back something to her and . I open all the e-mails from and I am grateful for the information. It means alot to me, thanx to all. I am 60 yrs. old and have been diagnosed for 8 yrs. I have had every symptom of CMT known and a few extras. I worked for 32 yrs as an industrial electrician. I am very fortunate to have an adequate retirement. My CMT progressed very rapidly. I went from one plateau to the next, stumbling, loss of balance, and weakness, falling and atrophy of upper legs, and I am now in a wheelchair. I have been on Neurontin (1800mg) since day one and Wellbutrin. I have had every test known to man, DNA tests, spinal tap,nerve biopsy, they were all negative. Now that I have bummed out the group. I have adapted well and have tried to keep a positive attitude. I have great friends and a sister who make life easier for me. Thanx Again, Dennis Quote Link to comment Share on other sites More sharing options...
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