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I fell twice while pregnant but only once did I need to go to the DR afterwards,

he just checked me out real quick...I got dizzy a lot though and had to sit to

keep from falling. One time I fell walking down the hallway carrying a basket

of laundry. My belly landed in the basket. I must of ticked her off cuz she

started kicking furiously :)...is did have an distended bladder (per the

ultrasounds I had weekly) and the nurses one time referred to her as having

Fetal Growth Retardation Syndrome. Other than being small and pretty beat up

from the labor she came out as perfect as I could have asked. She only weighed

5 pound 3 ounces but her father isn't a big man and other than my height & up

until after I had her I was pretty small myself. I actually weigh more now than

I did right after I had her....it's the cookie for her and two for me diet.

Of course I do think the strain on my body of being pregnant might have sped my

CMT along a little. Prior to giving birth very few people noticed my gait, now

everyone gives me the foot stare. My father in law likes to make up wild

stories for people who push it too far (one time he told them I got shot robbing

a bank) and my mother in law has the ability to make her eyes bug out of her

head and likes to do that to them when they stare at me. I've tried explaining

to them that it's just ignorance but they get angry because most people are

pretty rude about it. Of course that fact that I'm 5'10 doesn't help....LOOK ITS

A GIANT WITH A LIMP!!!

On a sadder note I think is is catching on about people looking at me....her

best friend was in the bathroom watching me brush my teeth one time and

is made her leave the room...She kept telling her she didn't need to be

looking at her mom. didn't know what to think....here she is just making

all of the faces I was while brushing and is got mad. I do worry what it

will be like for her in school...kids can be very cruel... I just hope that with

us being in such a small community that most of the kids will know from

kindergarten that its not a big deal....I don't want her to be the kid " with the

Mom that walks weird " .

As far as you having kids if your doctors all say ok then go for it....I

couldn't have asked for anything more from God than that little girl. I needed

her more than I think I'll ever fully understand.

Teri

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Teri,

It sounds like you went through a good bit w/ your pregnancy! Thank goodness

for the laundry basket! It's ironic that you mention that they thought your

daughter might have FGRS. The Dr's thought the same when my brother's wife was

pregnant w/ my nephew Bryce. But my brother doesn't have the CMT gene. Bryce

is ok, but it gave us a scare. I'm really glad to hear how your in-laws are

about your CMT. I think that's wonderful that they are understanding and

supportive. You're right kids can be very cruel. I'm sure kids probably noticed

my Dad's hands or his walk, but they never said anything to me. Most of my

friends were ones I made in Girl Scouts. I think the values they taught us in

GS (ie everyone is different but that's what makes us unique & the world would

be boring if we were all the same) probably helped my friends to be more

accepting (or just not notice) my Dad's differences. As long as you teach

is that it's ok for everyone to be different and no one is perfect,

then all you can do is hope that other parents are teaching their children the

same. You can only do your best and hope that it's going to help shape is to

be a good, accepting person as she grows up. It sounds like she is truly a

blessing in your life.

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