Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 Hi Sharon, Thank you for your lovely email. I am referring to A.I. Dupont Hospital in Delaware. I was given the hospital name by the CMTA group as my neurologist, Dr Harold Marks of CHOP is leaving. When I contacted them, I got a lot of information including the information on the meeting (first of its kind) March 31 at 7pm - 8:30pm. Dupont Hospital is located at 1600 Rockland Road, Wilmington, DE 19899. I spoke to Alisa who is the young lady who helped with all my concerns and questions. She is making arrangements for me to have appts with both Dr. Scavina, who is head of neurology and lots of experience with CMT patients as well as with a Dr. McKenzie who is a surgeon, also well adverse in CMT and CMT patients. Alisa can be reached at 302-651-5930. My whole family is going to the meeting as we all want to know as much as possible about Duponts facility and all it has to offer. We are about an hour from Dupont, in Montgomery County, so its not too bad of a drive. Hope this was helpful enough Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2004 Report Share Posted March 25, 2004 : Thanks so much for the information. I live in Bucks Co. (Warrington) and work in Ft. Washington (Montgomery Co.). I work as an Employment Specialist for Goodwill Employment Services--I assist persons with barriers to employment get back to work or sometimes to work for the first time. I am familar with Social Security as many of the people that I assist receive benefits of some kind. I also work with the medical issues dealing with SS receipents going back to work. Have you ever been in touch with the Univeristy of Pennsylvania in Phily? particularily Dr.Scherer? there is also a new center in stown that " specializes " in CMT. Again thanks for the information--I hope that I will be able to get there-if not take good notes for me! Thanks. Peace: Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2004 Report Share Posted March 25, 2004 Sharon, what a small world. I live near Montgomery Mall and my parents live just outside Doylestown! My parents are also coming with us to learn more about CMT. It was thru my mothers father that we have this. I do hope you can make it there it would be great to meet you. If not, and you are willing to meet somewhere or at least talk on the phone, that would be great too. Let me know. I work parttime and Fridays are my day off. Quote Link to comment Share on other sites More sharing options...
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