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Need CMT info

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Hi All,,

I finally have an appointmenmt with the County ESE Specialist for

Austin my 6 year old with CMT. He has the hardest time with his

hands and writing. Both The counslers at his school have left for

other jobs so now I'm going for the " BIG GUNS " The School Board.

My question is, Do anyone have any link to any information that will

help me in this battle? I have some printouts from CMTorg, CMTWorld,

and CMTMA. BUt they all have just basic info, short paragraphs.

Because Austin does show and issues on the " outside " people always

think its a " bluff " I wish. I would really love some HELP!!

My appointment is Tuesday afternoon.

Thanks in advance,

Mom to Austin(6) with CMT1A

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,

Go to our Files section, look for " Fact Sheet " folder. Click to open,

then open the Word doc. Mentions children and CMT too. I have another

link for you too, will post when I find it. Seems like you will need

to get an IEP in place for your son. MANY children, not only those

with CMT, have an IEP (Individual Educational Plan) - that the school

must follow.

~ Gretchen

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