MDA Appt.

[Guest guest]

I went to the MDA this morning for my first visit there and I must admit I

was really nervous about going. My anxieties were calmed, however, after

speaking with Dr. Beson and the other staff members that were there; including

another CMT sufferer. ) After being told that an EMG would NOT be done, I was

informed that the majority of my weaknesses lie in my fingers and in my

feet/toes.

Which led to the news that I was dreading the most, even more than getting an

EMG... I will have to use AFOs (( I don't know why I was dreading that so

bad, but it was the one thing that I didn't want to hear mentioned. I guess it

has alot to do with the outward appearance, but mostly it means to me that I

do need help even though I am too stubborn to admit it. I wanted the Doc to

tell me that I was stubborn enough notto need them, lol ) but I know that it

is

for theb est, which is why I am even willing to go along with getting fitted

for them. My appt for that is next Tuesday, so wish me luck, ya'll. I hope

that the staff at the clinic I am going to are as friendly and supportive as the

ones at the MDA office. It really surprised me to see how understanding they

all were, even though only one of them can actually relate to how I am feeling.

Anyway, I think that's enough of my ramblings, thanks to all for listening,