Introduction

[Guest guest]

Hi everyone,

My name is ; I am 49 years old and have had the evidence of CMT

since I was five. I was diagnosed with CMT when I was 17 years old and

at that time had surgery on both feet. I have a bilateral triple

arthodesis. I was headed for a wheelchair, so this surgery was

necessary. It was an answer to prayer. This surgery has helped me to

live a pretty normal life for over 30 years now. I have to deal with

numbness of my legs and feet. And my hands aren't as strong as they

once were, but " Praise God " I am managing nicely. I work full time and

use a push cart to get around from place to place. I can easily trip if

I don't lean on something when my legs and feet go numb. Pride does not

stand in my way of supporting myself and making my own living so I can

be independent.

My mom (70 yrs. old) has CMT also, and she has just had surgery for

breast cancer. Does anyone know what the side effects of radiation on a

person with CMT might be? I'm wondering if it might be better for her

to not have the radiation. Her scans have come back clean of cancer;

her lymph node biopsy came back clean., also. I feel it would be

better on her CMT to take a chance and if she gets cancer again; then

treat it. I just hate to see her suffer anymore; she's been through so

much already. Has anyone had to confront this crossroad before?

Thanks for your input,

in S.C.