Guest guest Posted June 11, 2004 Report Share Posted June 11, 2004 Hello All. Been away from the cmt group awhile. I'm 40, diagnosed at age 9. Over the last few years I have had a severe increase in pain in my left leg from hip to toes. I finally saw a Pain Specialist today, who wants to try me on Neurontin. I tried small doses of it thru my neurologist a couple years back to no avail, plus I read all sorts of bad things about it. Anyone out there have any good luck with Neurontin helping your Chronic Pain due to CMT? Any bad experiences? For now he put me on a 7 day Medrol Dose Pack (methylprednisone) then Vioxx once daily to try to keepme from taking Lortab so often, which hasn't been giving me much relief anyway. Any experience, advicee and/or feedback will be greaty appreciated. Thanks and blessings to you all. Holly Waters, Corpus Christi, TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2004 Report Share Posted June 11, 2004 five years ago my neurologist in Houston texas put me on to neurontin. I now take 1800 milligrams a day. I wouldn't live with out it. the only side affect I seem to have is my loss of the sense of smell and taste, it isn't gone completely but it is not a acute. to me this is a small price to pay for living nearly pain free.. my neighbor is on over 4800 miligrams for multiple sclerosis and he agrees with me it is great. he too loss some of his sense of taste. I wish everyone could have as good a luck with it as I have. Good luck Cathleen in Arkaksas Quote Link to comment Share on other sites More sharing options...
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