feeling of things moving/eyelid twitches

[Guest guest]

I, too have had those feelings of things moving when they are not, or feeling

like I am falling backward or forward when I am in actuality sitting still.

Also have had eyelid twitches since I was a child. Is this directly related to

CMT? Or is it just a fluke?

[Guest guest]

Hi :

I found I had the same symptoms. The symptoms seem to come and go, but were

sure to come right after I had been in a boat, or was fishing near fast

running water. I do not do well on anything that moves or rocks too quickly.

I would be sitting at the table feeling I was moving back and forth away

from my food, when I was not moving at all. Really weird sensation.

I was told by an ear, nose and throat specialist that I had

Labyrinthitis...an inflammation of the inner ear and semicircular canals.

These structures are normally responsible for the maintenance of balance and

the perception of body position. Inflammation of these structures can result

in nausea, vomiting and vertigo made worse by movement.

I always keep anti-vert handy. It is a prescription medication. Other

related causes can be vertigo and Menieres disease.

The interesting thing is that while I was complaining about being dizzy all

the time, over a 2 year period, that my doctor sent me to a neurologist. He

was responsible for having DNA testing done on me for CMT which proved I had

CMT1A. CMT did help to explain my dizziness. It can be one of the many

symptoms of CMT.

Regards,

Beckingham

Corporate Nice Guy

[Guest guest]

I experienced this just last week! My husband had purchased a motorcycle and

took me

for a ride. We stopped at a store after a half hour ride and I told him I'd

just sit on the

bike and wait for him. He told me not to move around too much since the bike

was

resting on the kick stand and is too heavy for me to hold it up if it started to

tip. As I sat

there I started to panic because I could swear that I was moving or slipping off

the seat

even though I wasn't. It was a crazy feeling and I didn't like it much.

I can recall one other time I had a similar feeling during an MRI. I was lying

on the table

inside the MRI machine and they had started the scan and I could swear my legs

were

slipping or falling off the narrow table. I kept twitching or moving them to

try to keep

them on the table but they weren't falling off to begin with. They ended up

having to stop

the scan and strap my legs and feet down so I'd know they weren't moving.

Both times seemed to be when I was nervous and my nerves already felt sort of

'jangled'

and I think that effected me.

As far as the earlier topic on crowds; I don't like them either for fear of

getting bumped,

pushed, trampled, etc.. When I do have to walk through a crowded room I hold my

husbands' hand and walk ahead of him with my other arm out in front of my body

slightly

so if someone backs up they will bump into my arm and I can sort of tap people

on the

shoulder so they'll move out of my way. I'm really petite and the easiest way

for me to get

through a crowd is to move fast and focus on where I am going and basically just

plow my

way through. If I have to stop and talk to people I feel more insecure about

getting

bumped or knocked off balance.

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