I don't know what to do!

[Guest guest]

I'm really dsperated right now. Last weekend I thought I could go

out and I did it. I also drank some beer and the next suterday I

drank a cup of coffee and since then many muscels jerks and twiches

and it has never been so harsh. I'm not sure if i should make sport

because I'm afraid to damage my muscel but on the other hand I'm

afraid of doing nothing because I afraid that they get weak. I don't

know what to do. Poropably this whole twichting things comes my new

braces because I haven't had braces before and now it's a different

style of walking what means that with thisdifferent style of walking

a whole lot of other moscel has to do work and that this is the

reason but I don't know what to do ... I always think that I'm 19

years old and that it will be a lot harder when I'm 40 years old ...

and then I think about killing myself because I don't wanna feel

this and I donÄt know what to do ... another important point is that

I'm almost the whole day alone because school is out and most of my

friends are working and live to far away and than I'm thinking about

this the whole day and I donÄt know what to do anymore ...

yours

Gregor

[Guest guest]

Hello Gregor,

First thing I would do was to look on the positive things in your life.

Some times some people tend to look at only the negative. Also, maybe seeking

some type of support group or maybe counsiling would help---it is all

individual,

decisions no one can change your life but you. Yes, we all have days when

things just seem to come to us so harshly---yet taking time for you is

important.

Also remembering that alcohol is a depressant in itself. The choices you make

right now will affect you for the rest of your life (something I say to my

kids and other friends who are going through our times). Listen, my oldest son

not only has CMT, he has childhood epilepsy, Learning Disabilities and some

gastrointestinal issues. Yet, he persevered and made the honor roll all year and

the last semester he made high honors. You can do anything Positive or

negative if you put your mind to it.

Thanks,

Heidi

[Guest guest]

Dear Gregor, I know it is hard to deal with sometimes. But you can't give-up

just yet.

I have had physical problems all my life and I am 31 now. My life is just

now beginning to get good. Maybe it isn't the right time for sports now. You

are young even though you may feel a bit out of place from time to time. Be

patient and good things will follow. Be strong and life will get easier. But

most of all if you really feel so bad that you think you might try to kill your

self please go to a doctor for help. I myself have been there several times.

It is not fun and it will never make things better. If I had ever really

went through with some of my plans I would not have had the chance to be as

happy as I am now. Please give things a little more time to work it's self out.

If you need to get something off your shoulder then send me an email.

I am just a regular person. I will tell you that I am married with 4 kids

ages 11,10,5, and 3.

Talk about stress. Please don't do anything to hurt your self. Because if

you don't care about your self then who will. I have learned that the physical

healing must begin with your self. On the inside. Here is a little saying I

put on my screen saver. Believe in your inner sprit to guide you. Listen to

what you want out of life then begin to think about what you can do to get the

things you want the most. I have to go now I wish you the best of luck.

[Guest guest]

Hey Gregor

I was told I had CMT when I was six years old I am now 24 and finding life very

hard. I did not listen to the doctors and put my leg braces in the cupboard and

they are still there to this day. I do kick myself now because my legs have

become too weak. I have had the same thoughts as you and this is normal but you

have to stay positive. Anytime you want to chat I'm here mate:)

Take Care

[Guest guest]

Hang in there Gregor!!! Take a deep breathe and try to think of all the good

and positive things in your life. Okay your friends are working but this

gives you time to explore new things in your life like reading a new book,

brushing up on your typing, or talking to new friends on line. Life always looks

darkest before the dawn. I am older 50 years old to be exact and I will tell

you

the truth, I have been down like you, so far down I couldn't see the top. I

have had or presently have... Perthes disease, diabetes, CMT, Cancer, and have

had 11 surgeries in my lifetime. I have not had any children of my own, my

first husband beat me and my family thinks I am the black sheep of the family.

On a Christmas Day in 1990 I decided I didn't want to live like this any more

so I called the suicide hotline and got put on hold. I took 58 darvocet pain

pills and lay down to die. A friend showed up and saw me through a window

laying in bed un responsive to his knocks. Well here I I am alive and well and

full of life and hope. I realized if I had one friend I should at least try

to hang on. In this group you will find lots of new friends who have all been

down the road you are own now. There is a power greater than you who created

you and loves you and He will not give you more than you can handle if you lean

on him and the people he gave you in this group. So you may not be able to

participate in sports as a player but coaches are needed in all sorts of youth

sports... I coached a 7 year old soccer team and won three out of three

championships. You have a lot to live for and your CMT is a challenge but you

can

still participate in life. Good luck to you and I will have good thoughts for

you each day. Cathleen in Arkansas