Re: Early symptoms in children - to

[Guest guest]

Dear :

I think we've decided to go for it....the potential benefits are just too

great...

The side benefit is that we've used the argument that he needs Vitamin C to

help his legs to convince him to eat his fruit and drink his juice in the

morning...it seems to be a good motivator! Getting him to routinely take a

vitamin supplement has proven harder, even the Flintstones multivitamins...I

think we'll be crushing the C up....

Gavin was never fast and in the words of one friend 'always looked as if you

could knock him off his pins easily' He crawled late but walked at 14 mo.

Stairs were a real worry. He had a febrile seizure at 18 mo. and walked

like a drunken sailor for days afterword..we wondered about neurological

damage at the time, but now wonder if the seizure caused a tempory flareup

of CMT symptoms...its a puzzle...

Thanks for the info

Cheers

Sally