involuntary movement

[Guest guest]

Reema,

Do you mean the involuntary movement is in your thumb (hands) or foot

(toes)? I am not clear on this. A simple hand/wrist brace might work to

hold your thumb (hand) in place. As for toes, I am guessing you mean

your big toe.

I stretch my toes out daily, manually and massage, plus while barefoot, like at

the computer, I use a tennis ball underneath my foot, roll it back and forth and

this loosens contracting toe/foot muscles.

In your last post you said your AFOs were problematic. If your toe/problem still

exists, perhaps adjustments need to be made.

~ G

[Guest guest]

Reema, the twitching you describe in your thumb is called a muscle

fasciculation, and is most often seen in motor neuron diseases. What

you describe is not a tremor, and according to my neurologist, it cannot

be controlled by a beta-blocker such as propranolol. I don't understand

what wearing your AFOs could have to do with a twitching in your thumb.

How did you make that connection? I wear AFOs, too and could never give

them up either. I have a motor neuron disease called Distal Predominant

Motor Neuronopathy, not CMT, even though that was the diagnosis I lived

with for nearly 7 years. The muscle fasiculation I experience was one

of the defining factors in the proper diagnosis of my disease (along

with muscle and nerve biopsies). Is it possible you might have

something else going on?

K.