Guest guest Posted June 2, 2004 Report Share Posted June 2, 2004 Deb, I understand your worry about your job and all,,,I was like you long time ago. I was lucky at the time and I had understanding people at work so it didnt bother my work at all. I still didnt tell my parents what I have or any member of my family. I'm not sure why but the only think I can say is that I feel is my disease and nobody elses..I never got anybody involve but just me. I'm so happy I found this group and I can share our every day living...sometimes it gets very hard for me to carry all alone. Spy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2004 Report Share Posted June 3, 2004 Deb, No one should ever feel the need to tell 'everyone' about their own CMT. I have been diagnosed for years and there are still people who do not need to know, and then there are situations in which I am truly 'out there' for CMT Awareness. Last year I was talking to a long-time friend about and having CMT and he said, 'ah come on, you haven't got anything like that' - (no, he's not stupid either, lol!) A few words of advice based on some of my experience: there's no need to tell people at work - unless it involves a personnel/human resources issue. If people asked, I'd give them a one or two line summary and brush it off and be on to my next project. I will tell you in the work environment I always managed to produce more in less time and have greater output quality in my work than anyone else. As a team leader, I was fair, but I wouldn't let anyone get away with anything. I too did not want anyone feeling sorry for me and still don't. Earlier this year I applied for a fellowship. In my application, I didn't include the fact I had CMT. I had a friend review my application and he suggested I include the CMT part. I was torn...gave it some thought, and then, decided to include the CMT part. For whatever reason, I did not receive the fellowship. Whatever we do, just go on from where you are, at your own pace, on your own time. Being newly diagnosed is a BIG DEAL and we all have our own personal boundaries to set. I am so happy you are a member of . Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2004 Report Share Posted June 3, 2004 Spy, I understand about the family thing. Only my immediately family knows but my brothers and sisters don't really have any desire to know about any of this. They just think I got what mom might have had and that is it. I too am glad to have this group. Lynn Quote Link to comment Share on other sites More sharing options...
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