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Severe CMT

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Hello Rob and to all:

CMT is severe for myself, and many others. I have been completely

wheelchair bound since age 18, I am now 32. I work occasionally,

and I am able to drive. The strength in my hands is really non

existant unable to grip or lift.

CMT is a prison (my opinion), my brain says to my hand lift that

plate, and my hand says " WHAT? "

This is depressing, and all readers here can relate to varying

degrees. I have a very positive attitude, and I feel I will walk

again. The people who should hear this, are politicians, so all

neuro diseases can be cured.

I know many here at write many papers/politicians telling

there stories, but I find the politicians, etc don't really listen.

Society has to realize that every human being is potentially 1 day

away from becoming disabled. So cures and treatments need to be

found.

Now that I have vented, I will say take care to all.

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