Guest guest Posted May 22, 2004 Report Share Posted May 22, 2004 Candy, I was very moved when reading your post. Quite an inspiration. I am a tad younger than you and was diagnosed as a kid - but, for years I lived with 'those fears of...what will happen to me; who will take care of me; how bad will it get'? All those questions in my head, causing worry, dread, and just amending fear upon fear. , what you said is so true - at any minute, anyone can have their life turned inside out by a disability. I don't know why I have CMT or what type I have or what anything means. But I do know it is my job to really take care of myself - from what I think, to what I eat, to the sleep I get, to nourish my soul as I choose, and to nix the worry. Everything I spent YEARS worrying about has not happened. Just alot of wasted time in those rivers of tears, but I guess I had to shed them to get where I am now. I just wish we could get some BIG, INTERNATIONAL ATTENTION for CMT Disease and get this disease out of the closet once and for all. Just seeing the strides in NT-3 and in the Vitamin C (Ascorbic Acid) research, I believe we are so close to arrestment once and for all. Remember, Can Manage This! ~ Gretchen Quote Link to comment Share on other sites More sharing options...
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