Question

[Guest guest]

I know right now the d rug that most places are pushing is Lipitor. I

think my mom was taking it. not sure how it all turned out but she's still

living. I know i know, yet again im a huge help....

MelindaAt 05:43 AM 3/9/01 +0000, you wrote:

>Hi Terri,

>

>When you know what the test names are I will be able to help you

>more.

>

> From what I know, the liver breaks down cholestol and triglycerides

>etc, so if its not working so well this wont happen as much.

>

>Borderline diabetes?? Type 2? First thought is " Is he on any

>medications from the Hepatitis that could be causing this? "

>

>There are drugs to help reduce high tryglycerides and cholesteral

>levels but i dont know much about them, Sorry hon.

>

>How you feeling?

>

>Love Aisha

>

>

>

>

>~~~~ *** ~~~ *** ~~~ *** ~~~~

> The Being Sick Community

>

>Help with Merger

>/files/

>

>Visual problems with colors?

>Click the link below and select the modify link to your right. Then select

>the **Send Plain Text Email** option. This will stop you receiving emails

>with colored or enlarged fonts.

>/join

>

>Members Lounge:-

>Photo Album, memorial page, members profiles, birthdays, locations,

>medical resources, counselling via email and a whole bunch of free things.

>http://www.elderwyn.com/members

>

>Message Archives and Digest Attachment Pictures:-

>/messages

>

>Chat:-

>Scheduled Daily Chats at # on IRC DALnet.

>/files/chat.htm

>

>Bookmarks:-

>Add a website URL you have found useful.

>/links

>

>Personal Complaints or problems:-

>Please contact a moderator either via email

><-owner > or visit:-

>/files/Moderators.htm

>

>Subscription Details:-

>1) Individual email - means that every email sent to the list you receive.

>2) Daily Digest - sends you 25 messages in one single email for you to

>browse. This is an excellent option if you receive alot of email.

>3) Web only/No mail - means that you can pop into eGroups at your

>convenience and receive no email.

>

>To modify your subscription settings, subscribe or unsubscribe, please visit

>/join

>

>~~~~ *** ~~~ *** ~~~ *** ~~~~

>

> " Hold on to what is good, even if it's a handful of earth. Hold on to what

>you believe, even if it's a tree that stands by itself. Hold on to what

>you must do even, if it's a long way from here. Hold on to your life, even

>if it's easier to let go. " - Pueblo Prayer

>

>

[Guest guest]

Dear Denisa,

They are usually branched off into specialties. Neurologists are a

strange breed of doctor!!! What area of neurology in particular are

you looking for? You might be better with newsgroups - do you know

how to get to them? If not - you might want to write to my hubby

gwydion, he can help you with setting up newsgroups, I know there are

some for neurology. His email addy is gwydion@...

Love Aisha.

> Does anyone know of any good, fairly active neurology lists for the

general public, not MDs?

>

> Denisa

[Guest guest]

Neurontin has been studied since 1983 and was approved by the FDA for the control of epilepsy in 1994. Parke- has been successfully conducting long-term clinical trials in doses at 2400-3600mg a day. In 1996, research for other purposes began appearing and there has been a quiet revolution of patients and doctors finding that Neurontin is helpful in illnesses other than epilepsy. Neurontin being prescribed for disorders other than epilepsy is called "off-label" use. Neurontin has medical studies showing it effective for off-label illnesses such as Reflex Sympathetic Dystrophy (RSD), peripheral neuropathy, the pain and spasticity of Multiple Sclerosis (MS), trigeminal neuralgia, migraines, neuropathic pain, postherpetic neuralgia, post-operative pain, myofascial pain (MPS), radiation myelopathy, Restless Leg Syndrome, Lou Gehrig's Disease (ALS), Periodic Leg Movement (PLM) and it is concluded (in one study) that gabapentin (Neurontin) "represents a novel class of antihyperalgesic agents" (pain medications). It also has been shown to be helpful in mood disorders such as Bipolar Disorder and depression. Dr. Seastrunk, a psychiatrist from Texas, has been finding that Neurontin may be helpful in CFS and FMS and theorizes that is because there is a focal brain injury that Neurontin can minimize. The following web pages are recommended reading:

Dr. Seastrunk's lecture from June 1997 Seastrunk's Patient Handout 1997 & 1998 research abstracts on Neurontin 1999 Neurontin Research Abstracts on Neurontin Year 2000 Neurontin Research Abstracts on Neurontin Parke-' drug insert (identical to the PDR information)

RESPONSE If a patient is going to be helped by this drug, there appears to be two types of "responders." Some people have an improvement in stamina and a marked reduction of pain immediately on starting Neurontin. Other folks will not obtain similar results until they reach higher doses. And there are people who will not receive any benefit from Neurontin. KIDNEYS It is important, since Neurontin is excreted through the kidneys, that your creatinine level is normal. This is a routine blood level that would have been drawn along with your usual yearly blood work. Many users have found that hydration is vitally important while using this drug. A small amount of water retention is normal, especially when ramping up (increasing) doses. If you find that your rings are tight and/or your toes are swollen, AND you are drinking less than four quarts (approximately four liters) of water a day, you may find that increasing your intake of water will help eliminate any excess fluid. However, if you gain over 5 pounds (approximately 12kg), you may temporarily need a diuretic to help flush out the Neurontin. If you find that you are continuing to have worsening water retention, your doctor needs to be consulted as soon as possible. BLOOD LEVELS Your doctor may wish to insure that your "gabapentin" level is within certain limits. This blood level becomes important only if taking higher doses. Seastrunk feels that a trough level (about 8 hours past one's last dose) of 8-18 is desirable. Since Neurontin is totally excreted from the body within 8-9 hours (if there are no kidney problems), dosages should be divided into four times a day to keep a constant blood level. POTENTIAL DRUG INTERACTIONS The official Parke- drug insert states that there are no adverse drug interactions, but the Neurontin List has found that taking Neurontin with some (if not all) opiates also tends to potentiate any brainfog problems. Separating these drugs by a couple of hours would minimize this problem. MAGNESIUM Dr. Seastrunk says that magnesium should not be taken with Neurontin at all because it competes for the receptors in the brain that Neurontin is attempting to reach. However, Parke- and CFIDS specialists prescribing Neurontin suggest only that the two be separated by two hours. Since magnesium (and perhaps calcium) does have antacid properties, taking the two together may immediately interfere with Neurontin being correctly absorbed in the stomach. Because magnesium levels are often low in people with CFIDS and FMS, many of us feel that it is very important to continue taking magnesium. By scheduling the magnesium between doses of Neurontin (preferably once a day), hopefully there will be minimum interference with Neurontin. DOSAGE RAMPING "Ramping up" (increasing the drug) will be an adventure of its own. Dr. Seastrunk states he uses twelve different dosing schedules, and you and your doctor will decide how often and how much your doses will be increased. His usual ramping up doses are one extra capsule a day every 1-3 days. Many of us on Neurontin-L feel that this is the best way to do it. By quickly ramping up, one will feel the transitory side effects for a shorter period of time. SIDE EFFECTS Some people have been able to ramp up with little or no normal side effects of brainfog, ataxia, or visual problems. However, most of us have experienced these side effects at various dosages. Some occur over a very brief time, and others are incapacitated by how long they last. Unfortunately, we can find no way to predict if, when, or how long they will occur. But we do know that poor hydration and not eating some protein with your dosages will make them worse. Seastrunk states that if you feel "drunk" after a dose, then you've taken too much. He also states that the side effects will probably not be any worse than you've already suffered with your CFS/FMS. If the side effects are troublesome for more than a week or two, some of us have had success in dropping down the doses (at not more than 400mg a day) to a point where the side effects disappear. After stabilizing at that lower dose, some have found that ramping up again will not reproduce those side effects. Troublesome side effects are probably the main reason for patients and doctors deciding to greatly decrease or wean off Neurontin. PATIENT ASSISTANCE PROGRAM Parke- has two Patient Assistance Programs for US citizens who have no insurance to help with the expenses of this drug. 1. If the patient makes less than $16,000 a year and is not married or if the patient is married and makes less than $25,000 a year and have no insurance, the patient qualifies for the Patient Assistance Program. The cost to the patient is $3.00 a month for whatever amount they are taking. 2. The second program is for those patients who make more than the amounts above, but don't have insurance or the insurance doesn't cover prescriptions. The patient also has to be taking more than 1200mg per month to qualify. This is called the RECAP Program. The patient can be enrolled over the phone and they will send a card that can be taken to any pharmacy along with the prescription from the doctor. That program costs the patient $138.00 per month. The card is valid for 6 months and can be renewed by phone. Call 908-725-1247 and select the option to talk directly to a Service Representative. (Bypass the automated selections!) You will be asked for the name and address of your doctor. They will mail or fax the forms that need to be completed to your doctor.

Any information provided should not be interpreted as a substitute for physician evaluation or treatment. Users are advised to seek the advice of a health care professional and practitioner. Users are advised to rely on their own training, education and experience. The author of this web page shall have no liability whatsoever for direct or indirect, special or consequential damages relating in any way to the use of information provided or resulting from any defects or failure of this information.

Denisa <just4today@...> wrote:

I am a sopcial worker and worked with the mentally ill for many years. Neurotin is used for bipolar disorder and seizure disorders. There are other uses for it too? Can someine enlighten me on other uses for Neurotin? I also did not know it was considered a narcotic/pain med? Just asking for info..always wanting to learn...<grin>

[Guest guest]

Denisa,

Neurontin is not a narcotic. It is used to treat painful types of 'problems/diseases' for example I am on neurontin 600 mgs 3 times a day, for my fibromialgia. It is very painful for me to be touched or hugged most of the time due to the pain from the fibro. I was told it was used as for control of seizures so I supose even If I have never had one lol I could be kept from having them lol! Oh well! I do know though that it is used as a painreliever but it dosent work withink 2 hrs or 1 hr after taking it. It takes time to work up to the dose I was on. I had to take 100mgs for 2 weeks, 200 mgs for 2 weeks, 300 mgs for 2 weeks, and so on......it takes a while to work up to a dose that might help. It dosent help me still at 600 mgs 3 times a day though some people it helps and then for some it dosent.

Hope I have helped at least a little. Btw, I am also though on welbutrin 300 mgs, paxil 60 mgs, concerta, and sinequan 100 mgs. The combo helps with the depression.

Love,Georgianna

I am a sopcial worker and worked with the mentally ill for many years. Neurotin is used for bipolar disorder and seizure disorders. There are other uses for it too? Can someine enlighten me on other uses for Neurotin? I also did not know it was considered a narcotic/pain med? Just asking for info..always wanting to learn...

> >Denisa > >"The one thing I miss the most that I lost while I was using drugs...my mind" > Tyler (Interview) > >"We're all here cuz were not all there tonight >"Fever" by Aerosmith (Get A Grip) > Get your FREE download of MSN Explorer at http://explorer.msn.com

[Guest guest]

"However, if you gain over 5 pounds

(approximately 12kg), you may temporarily need a diuretic to help flush

out the Neurontin."

EEk!

I hope this is a typo...5 pounds is

actually equal to approximately 2.3 kg.

1

(who has once again been studying

for her dosage calculations test!! LOL)

[Guest guest]

Denisa,

Sorry for being behind on my e-mail. I wanted to let you

know that I took Neurontin from Dec of 1998 in to the

Summer of 1999 for the chronic pain problem that came from

my shoulder and breast area, but stopped taking it when I

changed the brand of birth control pills and no longer

needed the help of Pain Management. What I found however

was that it did nothing for any of my female pain as a

result of the conditions endometriosis and vulvodynia.

I hope that this is of some help to you.

=====

Kristy

http://www.geocities.com/sokokl/kristyspersonalpage.html

__________________________________________________

[Guest guest]

Its also used as an anti-seizure medication.

Aisha.

> I am a sopcial worker and worked with the mentally ill for many

years. Neurotin is used for bipolar disorder and seizure disorders.

There are other uses for it too? Can someine enlighten me on other

uses for Neurotin? I also did not know it was considered a

narcotic/pain med? Just asking for info..always wanting to

learn...<grin>

>

> Denisa

>

> " The one thing I miss the most that I lost while I was using

drugs...my mind "

> Tyler (Interview)

>

> " We're all here cuz were not all there tonight

> " Fever " by Aerosmith (Get A Grip)

[Guest guest]

Georgie hon,

Why are you on sinequan! I was on that and it is one of the most

lousiest antidepressants there is!!!! Can you not take zoloft or

amitriptyline?

Love Aisha.

>>Hope I have helped at least a little. Btw, I am also though on

welbutrin 300 mgs, paxil 60 mgs, concerta, and sinequan 100 mgs. The

combo helps with the depression.

Love,

Georgianna

[Guest guest]

Sinequan (doxepin) is not much different than amitriptyline. They are both tricyclics. I'm curious as to why you are so negative towards it. It is good that a doc will make up a "cocktail" that works for someone. It can be better than one med alone.

Curious Ol' Lee

Aisha Elderwyn <aisha@...> wrote:

Why are you on sinequan! I was on that and it is one of the most lousiest antidepressants there is!!!! Can you not take zoloft or amitriptyline?

[Guest guest]

Oh I totally disagree!!!!

Speaking as someone who has taken both!!!!!

Sinequan is based on H2 inhibitors (sp??) and works more like and

antihystimine then an antidepressant tablet. Even my Docs all agreed

that its a lousy antidepressant. They use it to help people get some

sleep without putting them on zombie sleeping pills.

Amitriptyline works on seritonine levels (not sure if sinequan does

or not as I am not that familiar with it - was very sick at the time

I was on it) and it works totally differently then sinequan does.

Dont ask me how, I am just human, not a medical person, but it does!!

Amitriptyline can prevent migraines, neuralgia, and other stuff where

as sinequan is getting outdated in preferace for drugs such as

zoloft.

I agree that cocktail of meds is the way to go, thats whats worked

for me!!

Anyhow I have forgotten what I was talking about so I'm going to

ramble about something else now

Love Aisha

>

> Sinequan (doxepin) is not much different than amitriptyline. They

are both tricyclics. I'm curious as to why you are so negative

towards it. It is good that a doc will make up a " cocktail " that

works for someone. It can be better than one med alone.

>

> Curious Ol' Lee

[Guest guest]

www.wholesalesuppliesplus.com has a Beautiful perfume " knock off " . It's

very good! :->

- Ela

(000)___(000) Ela Heyn

/ @ @ \ ferret@...

| |

======@====== http://www.geocities.com/Heartland/5483

[Guest guest]

Hi Patty,

(now 5) had this procedure when he was 2 1/2 since he was born with

undescended testicles. The doctor encouraged us to get it corrected soon

because it is a painful procedure to have them tacked down. He was pretty

pathetic for a couple of days but no problems since. Nobody said anything

about cancer although doctor did say it could cause " complications " if we

didnt get them fixed. The operation was done as an outpatient- took about

45 minuted. Nobody ever said anything about taking them out, they just

pulled them down. I would definately get more info.

Jodi

question

>Hello There,

>I am Patty, mother to d/s, 9 years old. Has anyone had any problems

with their sons testicles? I am told that s' hasn't come down and that

they will have to be taken out as to prevent them from causing cancer. Does

anyone have any input to offer? It would be greatly appreciated.

> Thanks, Patty

>

>

>Click reply to all for messages to go to the list. Just hit reply for

messages to go to the sender of the message.

>

>

[Guest guest]

In a message dated 6/4/2002 1:36:04 PM US Mountain Standard Time,

loree5@... writes:

> My little guy's one testicle hasn't come down and the doctor said if it does

> not descend they will have to tack it down surgically. Absolutely nothing

> was said about it causing cancer.

Hi,,

My oldest had this problem when he was younger. They said if it didn't come

down on it's own they would have to do it surgically or he would be at a

higher risk for cancer. It came down the day we went in for our preop exam.

LOL.

[Guest guest]

Patty,

I think they mean the testicles would have to be taken out of the abdomen and

placed in the scrotum where they belong. Testicles in the abdomen can become

cancerous.Ask for more info from your Dr about that.

We had a foster son who had this procedure. It is painful, but as with most

kids, he bounced back quickly with no complications.

B CNY

Mom to Heidi 11 DS, Caleb 11 NDA,

Corrie 10 DS and Mae 6 DS

GOD BLESS AMERICA!

question

Hello There,

I am Patty, mother to d/s, 9 years old. Has anyone had any problems

with their sons testicles? I am told that s' hasn't come down and that

they will have to be taken out as to prevent them from causing cancer. Does

anyone have any input to offer? It would be greatly appreciated.

Thanks, Patty

[Guest guest]

My son had this surgery done on Jan. 24th of this year. One testicle

did not drop so they tacked that one down. That part of his surgery was not

bad! An inch incision to the side of the abdomen, and a small hole in the

scrotum. I did it sooner than later since it had not dropped on it's own.

He had hyperspadius too and that part of the surgery was another story!

(Cathed for a week...)

Lori

Mom to Will, 6 1/2 yrs. and , 3 1/2 yrs. (Child w/DS)

Family website: http://hometown.aol.com/lorimarque/MarquetteFamily.html

[Guest guest]

Hi Patty,

My little guy's one testicle hasn't come down and the doctor said if it

does not descend they will have to tack it down surgically. Absolutely nothing

was said about it causing cancer. In fact someone i know had an accident and

his testicle was damaged. Doctor said the worst case scenerio was that it would

just shrivel up. He asked about cancer and the doctor told him " no way, would

it cause cancer " so i don't see much difference here but what do i know? Just

offering my own experience and what I've been told. Hope it helps,

Loree5

question

Hello There,

I am Patty, mother to d/s, 9 years old. Has anyone had any problems

with their sons testicles? I am told that s' hasn't come down and that

they will have to be taken out as to prevent them from causing cancer. Does

anyone have any input to offer? It would be greatly appreciated.

Thanks, Patty

[Guest guest]

Boy I'm kind of sorry I found out about the cancer risk. Sometimes ignorance

truly is bliss!!!!

Loree

Re: question

In a message dated 6/4/2002 1:36:04 PM US Mountain Standard Time,

loree5@... writes:

> My little guy's one testicle hasn't come down and the doctor said if it does

> not descend they will have to tack it down surgically. Absolutely nothing

> was said about it causing cancer.

Hi,,

My oldest had this problem when he was younger. They said if it didn't come

down on it's own they would have to do it surgically or he would be at a

higher risk for cancer. It came down the day we went in for our preop exam.

LOL.

[Guest guest]

Hi Patty,

my son is 10 and he has the same problem. They have

not " fallen " - but the doc has always told me it was

not a big deal - that it is actually normal since the

only reason they " fall " is to keep the sperm healthy

and productive - since generally DS males don't

reproduce (or so I've been told and read) that it is

not a big concern...

But am anxious to hear other's input.

--- Villpp@... wrote:

> Hello There,

> I am Patty, mother to d/s, 9 years old. Has

> anyone had any problems with their sons testicles?

> I am told that s' hasn't come down and that

> they will have to be taken out as to prevent them

> from causing cancer. Does anyone have any input to

> offer? It would be greatly appreciated.

> Thanks, Patty

>

__________________________________________________

[Guest guest]

actually my brother in law did develop testicular cancer and his testicles

did not come down. he was older when diag. (35) so when he was a baby they

didnt know any better. good news is he has been cancer from for 15 yrs nows.

anyway, doc said that that being his testicles did not come down, it was a

huge reason as to the cancer. i always heard that if they dont come down by

the time they are two they do the surgery but dont know if thats always true.

this one one thing my ben didnt have to go thru. or alex either.

Update on Ben-feeling better, still tired and still looking for the right med

combo. they took him off depakote. put him on trileptal and zyprexia.

gained huge amount of weight. took him off zyprexia put him on buspar.

still eating like a mad man and very aggitated. took him off buspar and are

not trying seroquel. good news is only two more days of school. bad news is

summer will be here and i have no choice but to leave my two alone a couple

hours everyday. hopefully they wont kill each other. told my boss at work i

should be tested for mono myself because i could use some time off.

Had bens iep for next fall. he will be back in his home district high school

and we are really excited about this. will share more of our meeting at

another time.

Happy 18th Birthday to Amy June 1. (It was a special day for us too as we

celebrated my parents 50th wedding anniversary with a huge party).

Amy-way to go girlfriend on your date. Mom-i agree, go with your gut

instincts.

love to all and sorry i missed seeing the Queens purse.

Kerrie mom to ben 17ds and alex 14nda

[Guest guest]

Hi,

has an appointment with the urologist next week. The urologist who

looked at him a few years ago didn't think it was a big deal but when we

went to the Children's Hospital Down syndrome Clinic last month, they wanted

to get a second look. It never hurts to be too cautious, especially with

our kids.

Dad to , Kristi, (all three Ds) and (Cri du chat)

Husband to C.

Re: question

>

>

> In a message dated 6/4/2002 1:36:04 PM US Mountain Standard Time,

> loree5@... writes:

>

>

> > My little guy's one testicle hasn't come down and the doctor said if

it does

> > not descend they will have to tack it down surgically. Absolutely

nothing

> > was said about it causing cancer.

>

> Hi,,

> My oldest had this problem when he was younger. They said if it didn't

come

> down on it's own they would have to do it surgically or he would be at a

> higher risk for cancer. It came down the day we went in for our preop

exam.

> LOL.

>

>

>

>

>

[Guest guest]

Nic's one testicle " went up " at his last Dr visit. this is the first time it has

happened. The Dr wasn't really concerned about it.

Di

Re: question

>

>

> In a message dated 6/4/2002 1:36:04 PM US Mountain Standard Time,

> loree5@... writes:

>

>

> > My little guy's one testicle hasn't come down and the doctor said if

it does

> > not descend they will have to tack it down surgically. Absolutely

nothing

> > was said about it causing cancer.

>

> Hi,,

> My oldest had this problem when he was younger. They said if it didn't

come

> down on it's own they would have to do it surgically or he would be at a

> higher risk for cancer. It came down the day we went in for our preop

exam.

> LOL.

>

>

>

>

>

[Guest guest]

I have been told the same thing, that ds boys cannot father children,, so to

me it would make since that the testicles dont always come down,, but refer

to a specialist if you feel the need for a complete answer, but as we all

know the answers are all different--lol--- Nettie619

[Guest guest]

Lyn, Umm I know that I use the MMS lye calculator and its a good one, but as

for percentages, The Soapmakers Companion book has some of those guidlines.

Im not sure of any websites that have suggestions.

Good luck Lyn! Its good to hear from you again.

Good luck!

Shaye

The Soap Shack

www.mysoapshack.com

question

hello there

it's been a while for me to post anything.

i haven't been making any soaps in like 6 monthes so now i want to

start up again and i decided to change my recipe. my sister came up

with all our recipes so i don't have a clue where to start.

i don't know where to look to tell me if i am putting too much of this

oil or that oil in it.

my recipe now is:

coconut oil......20 %

palm oil.........20 %

shea butter......30 %

olive oil........30 %

can anyone direct me to place that tells me what each oil is good for

and what percentage to use???

and another stupid question......what is superfatting??

thanks everyone!

lyn

Our Message Board

http://www.voy.com/21568/

Check out these great Molds!!

http://soapwerks.com/martinworld.htm

Member Kae's Site... Awesome oil Prices!

http://www.olivetreesoaps.com/

All posts to this list are copyrighted by post author. They may NOT be

forwarded, copied, or used in anyway without the permission of the post

author with the exception of answering posts to this list. Posts are

personal opinions only.

[Guest guest]

littlejen93 wrote:

> Okay, I've belonged to this group for about a month now and I've

> picked up on most of the abbreviations -- but I'm still stumped by

> DH. I know it's " husband " -- but what's the D? DUMB HUSBAND?

> DESIRABLE HUSBAND? DEDICATED HUSBAND? DELICIOUS HUSBAND?

90% of the time, for me, it's Dear.

Serenity (who won't talk about the other 10%)

--

http://www.theonion.com

[Guest guest]

Darling Husband!

Park

Question

Okay, I've belonged to this group for about a month now and I've

picked up on most of the abbreviations -- but I'm still stumped by

DH. I know it's " husband " -- but what's the D? DUMB HUSBAND?

DESIRABLE HUSBAND? DEDICATED HUSBAND? DELICIOUS HUSBAND?