Help

[Guest guest]

hi Haven, Your son sounds a lot like mine was. I know what you are talking about when you say he can act like a cornered anima l - like a psychosis comes over them. We have found that we had to deal with the allergy situation before we could actually see the results from chelation and supplements. After a lot of trial and error we found that corn (maize) and any of its products including dextrose were very bad for him -- incidently he is okay with wheat, but not dairy. I wonder if this has anyting to do with liver damage possibly caused by mercury (e.g.the methyoation/metallathionien process) in that could it disrupt the way it handles glucagon and therefore blood sugar regualtion - making dextorse a problem?? I bet so many physiological process are disrupted by mercury and heavy metals and it takes time for the chelation to allow them to get back into balance - so minimizing some of the fallout/cascade effects from those (like

allergies) really helps. But still,even these are dealing with symptoms of the original problem,but make life so much better. Anyway, try keeping him off any corn product (corn starch, modified starch, corn syrup, high fructose-glucose syrup, xanthan gum (it is derived from corn), dextrose, and probably dextrin and maltodextrin. And admiraiton to you for having the courage and sensibility to know what you see, act on it and for taking your son off of those steroids!!!! Best to you and your family, PS: forgive my typing errors - it is late at night and I just had to respond to your letter.Haven <horses@...> wrote: Thank you so much for your kind words. Yes, We have been seeing different DAN! doctors since all this started. First we saw Amy Holmes, and she helped us a lot. The DAN! we see now is also an allergist and immunologist, but he really isn't giving us concrete answers to this situation, and he also suggested that Ethan take the steroids. I cannot deal with him on steroids! It makes him crazy. It breaks my heart to see the kind of child steroids turn him into. He is usually a very loving, happy, affectionate, high functioning child who pretend plays all the time and has a sense of humor and loves to make people laugh. Steroids seem to turn him into a rather paranoid individual. When we were in that bathroom he behaved like a

cornered, wild animal. It just was breaking my heart because I couldn't reason with him or calm him down and get him over that fear. I think the doctor suggested diabetes due to the excessive urination yesterday and the elevated heart rate, but I think his anxiety was the cause for the heart rate. I have no clue as to why he said my son was obese. No one who looks at him would think he is obese. He does have the distended belly that so many autistic children have. We saw his regular doctor today. She is not a DAN! physician, but she is a holistic D.O. and I was lucky to find such an open minded practitioner. She has helped me with my own health immensely. She has helped our son too. the only reason I went to these other doctors over the past couple of weeks is because our DAN! doc and the regular doc were both booked solid and we couldn't get an appointment. Our DAN! doc just hasn't been really helping Ethan much lately. The transdermal chelation just hasn't worked for Ethan. We had better luck with suppository. We are going to do a challenge test with that again once we get him well. Ethan's family physician told us today that Ethan IS NOT obese and he tested negative for diabetes, but she said if we kept giving him steroids the way that other doc wants us to, he could well wind up with diabetes. She feels that Ethan's nasal and respiratory condition is due to an overgrowth of fungus and she told us to put him on an anti yeast diet and put him back on Nystantin pronto. I think what she says makes sense since he has been on so many rounds of antibiotics for the last couple of months. He was all ready SO much better today after having gone

twenty-four hours without any steroid. He is coming back. Today was so much better! The people at this family clinic have known my son since he was two. He still wouldn't go into the public bathroom there. They were understanding, so they let him pee in the cup in the exam room for the urinalysis. Thanks again for your kind words. Haven

Enrich your life at Canada Finance

[Guest guest]

Yep..I know yeast!

I hope he keeps feeling better. This doctor sounds like the right one!

[Guest guest]

Debi,

Thanks so much! He is on manner of the supps you mentioned but not beta glucan. I may add that for a trial and see if that helps.

We saw his regular doctor today and she thinks it is fungal. He is back on Nystantin, and we are going to put him back on naltrexone (we had run out).

Thanks again!

Haven

[Guest guest]

Haven,

I have two children on the spectrum, and we have also been to various DAN!

doctors over

the last few years. They are NOT all created equal! I am currently in transition

as we speak.

I wanted to tell you some of the things that we do for our oldest, higher

funtioning son (7

yrs) in regards to his chronic asthma and immune problems (BTW, he has missed

more

days of school than he has attended this year also, due to illness). He was

never formally

diagnosed with asthma either until he was 5, and at that point it was a trip to

the ER every

2-3 weeks because he literally coudn't breath.

I have learned over time that a lot of it-if not all of it- is related to

allergies and also by

serious viral issues due to his reaction to the MMR and varicella in the same

day.

First of all, look around your house and see what may be aggrivating his

condition. I go

through my sons room weekly and clean out the air filter, vacuum the carpet

(which is

bainful in the first place) clean the window sills- especially if you live in a

dry climate and

have to run a humidifier: though they are helpful for asthmatics, they do cause

mold.

Speaking of mold, make sure there is none of it hiding anywhere, Get rid of any

and all

non-essential stuffed animals, and anything else that might be a dust magnet.

We found that adding NAC (n-Acetyl-cysteine) helped his asthma too. Even with

severe

problems we are able to get by with minimal medication. I hate using any, but

this gets

serious with Alasdair. We keep flo-vent on hand because it is a maintenence

medicine and

at the first sign of a cold or viral flare -up, I know it will save us from a

hospital visit. Be

careful because this stuff stirs up yeast, especially in the mouth. I only use

albuterol when

there is a real attack or wheezing.

I would avoid using prednisone or prednisalone at all costs if possible. It is

nasty stuff-I

have all of the same allergies that my affected kids have and I coudn't function

on it during

a serious reaction. I didn't even feel like I could stand up on it.

I am not recommending any drugs here, if you can find a solution without ANY

drugs.

please let me know! I will try it with my son, too.

HTH,

Mother of Conrad (6) and Alasdair (7)

Mercury Poisoned

[Guest guest]

Hi Tara,

I wanted to agree with all the loving posts that have been sent your

way this evening. We are all sending you loving thoughts and/or prayers.

I dove into the book, Nutritional Healing, by Phyllis Balch for some

words of wisdom. I bet it's available on ebay or at your library as

it's now in its 3rd edition.

She has wonderful suggestions for vitamins, minerals, and herbs. I

wanted to share these quotes;

- " Cultivate relationships with people who make you feel

important-people who are admiring an dencouraging of your

accomplishments and interests. As much as possible, remove from your

life anything and anyone who makes you feel inadequate and " put-down. "

Consider counseling to help you learn to cope wiht those negative

situations you cannot avoid. "

- " Researchers have found that zinc supplementation (80mg per

day...never more than 100mg per day) decreases depression and anxiety. "

- " Avoid processed and junk foods. The additives these fooods contain

tend to add to the aversion to eating. "

Let me know if you have trouble finding the book and want more details.

I wanted to add an idea...

I dated MANY men but was engaged 3 times to the same guy. We planned

two weddings, but I wasn't happy...It was a rough 2 years. Yes, there

were good times, but I just kept feeling that he wanted to change me.

He was not the man I married.

A year later,I purposely chose a guy who was kind to his mother and to

me

We celebrate our 25th anniversary this summer

Go for the joy...your joy.

Cyber Hugs,

M.

[Guest guest]

Just an FYI, my daughter with autism was on nystatin the first 4 mos

of her life with thrush, it didn't do anything for her. We found great

success with diflucan, in case you don't see any changes.

HTH,

Debi

[Guest guest]

You know what, you're doing the best you can. Don't beat yourself up,

if you feel you were wrong, apologise sincerely & ask The Lord to take

away your guilt. It's never okay to hurt a child; at the same time

when we're in an impossible situation like you were, we muddle through

it the best we can. Impossible behavior is more than likely going to

get impossible reaction from parents, we're only human.

Debi

[Guest guest]

Haven,

Glad to hear that Ethan is getting better. I hope you can start

focusing on his tooth problem. Also, glad to hear about the DAN!

protocol you are following. My son is 6 as well and we are

simalarly doing Supps, Nuthera, Zinc, Folinic Acid, TMG, MB12,

Probiotics, glutathion, and are starting our second round of TD-DMSA

tomorrow morning. We will start LDN soon after. However, we also

have the yeast thing going, originally due to taking traditional

antibiotics. We used Ket and Met as we call it at home. Ketoconozol

(sp?) and Met (forgot the name). The Ket is the anti-fungal, and he

Met is anti-bacterial. Seemed to work fine. And we used Probiotic to

help replenish the good bacteria.

I have an older NT child who is asthmatic, and we have used xopenex,

albuterol, claritin/nex, and of course in extreme breathing cases

prednisolone. And yes, like another parent said, you have to ween

them off it slow, as you did. Last resort....

Best of luck

By the way, my son is the expert at peeing just under the toilet seat

and onto his pants. I've got to be fast....

Steve

's dad

[Guest guest]

we have oral chelation

Sincerely,

H.H. Fudenberg, M.D., D.D.G., I.O.M.

226 Edgewater Road

Inman, SC 29349

864-592-8076

nitrf@hotmailcom

From: Haven <horses@...>Reply-EOHarm To: redhead60707 <EOHarm >Subject: Re: Re: HelpDate: Thu, 27 Apr 2006 22:00:15 -0500

Thank you so much for your kind words. Yes, We have been seeing different DAN! doctors since all this started. First we saw Amy Holmes, and she helped us a lot. The DAN! we see now is also an allergist and immunologist, but he really isn't giving us concrete answers to this situation, and he also suggested that Ethan take the steroids.

I cannot deal with him on steroids! It makes him crazy. It breaks my heart to see the kind of child steroids turn him into. He is usually a very loving, happy, affectionate, high functioning child who pretend plays all the time and has a sense of humor and loves to make people laugh.

Steroids seem to turn him into a rather paranoid individual. When we were in that bathroom he behaved like a cornered, wild animal. It just was breaking my heart because I couldn't reason with him or calm him down and get him over that fear.

I think the doctor suggested diabetes due to the excessive urination yesterday and the elevated heart rate, but I think his anxiety was the cause for the heart rate. I have no clue as to why he said my son was obese. No one who looks at him would think he is obese. He does have the distended belly that so many autistic children have.

We saw his regular doctor today. She is not a DAN! physician, but she is a holistic D.O. and I was lucky to find such an open minded practitioner. She has helped me with my own health immensely. She has helped our son too. the only reason I went to these other doctors over the past couple of weeks is because our DAN! doc and the regular doc were both booked solid and we couldn't get an appointment.

Our DAN! doc just hasn't been really helping Ethan much lately. The transdermal chelation just hasn't worked for Ethan. We had better luck with suppository. We are going to do a challenge test with that again once we get him well.

Ethan's family physician told us today that Ethan IS NOT obese and he tested negative for diabetes, but she said if we kept giving him steroids the way that other doc wants us to, he could well wind up with diabetes.

She feels that Ethan's nasal and respiratory condition is due to an overgrowth of fungus and she told us to put him on an anti yeast diet and put him back on Nystantin pronto. I think what she says makes sense since he has been on so many rounds of antibiotics for the last couple of months.

He was all ready SO much better today after having gone twenty-four hours without any steroid. He is coming back. Today was so much better! The people at this family clinic have known my son since he was two. He still wouldn't go into the public bathroom there. They were understanding, so they let him pee in the cup in the exam room for the urinalysis.

Thanks again for your kind words.

Haven

[Guest guest]

Tara

have you checked out the web-page I keep recommending to others?

check it out: thepathway.org

it's not therapy

the have a good approach

felicity

[Guest guest]

In addition to what eveyone else has said I just wanted to say --

that's OK that this is a tough time for you.

Planning a wedding and getting married are stressful times for everyone.

I sincerely doubt if anyone has ever gone through a wedding without a

ton of stress.

Just know that you are not crazy -- every one finds it hard.

OK -- I can't resist a plug for the pathway -- the thing the pathway

teaches is 1) to be very gentle with yourself during times of high

stress and 2) skills to use to help yourself during high stress times.

felicity

[Guest guest]

Hello Tara,

I am a recovering anorexic for the last 2.5 decades.

In my 20's, I was in and out of the hospital every other year.

I have developed uclers; heart disease; acid reflux as a result of being

anorexic. I've also been severely depressed.

How tall are you?

What size frame do you have?

What is your Meal plan? Pls state the hours as well.

" I eat almost the exact same thing every day b/c of afraid that I'll go out of

control with eating and binge or gain weight b/c of adding calories. " That's

normal. Don't worry about it. I have some recipes that you will like. Focus

on the # of calories per meal per day. Variety will make you feel better.

Trust me on this.

" My hair is thin and dry, my skin is dry, my nails are purple and peeling, I

keep getting hurt, and I'm tired all of the time. " This is normal as well.

First of all it is terrific that you are eating 1600-1700 cals/day. What

Nationality are you? What generation American are you? How much water do you

drink?

" All I seem to think about is what and when I'm going to eat, figuring out

protein/carb ratios. " This is normal as well. What are your Meal Plans? Do

you create it ahead of time?

I have to drag myself to the gym, but I can't stay away. It makes me very

anxious to think about skipping a workout. " Me too. Exercising is good for

you. What do you do? How often and when?

" I felt so guilty the other day for putting a wheat thin in my mouth that I

spit it out. " Unfortunately, that's normal as well. Focus on the big picture

right now.

" I feel crazy. I just want to be healthy, but i know I'm not. I'm tired of

being obsessed. I've tried therapy, i was on antidepressents. Nothing seems to

help. Sorry. Just needed to vent. " Just give us the specifics of your days. We

will be able to provide further input.

" I feel so shallow and selfish b/c I know so many people have horrible

problems. I just can't seem to stop thinking about exercise and food. It

controls me. it keeps me from goign out with people, even my fiancee.It's

interfering with how I do my job. I feel so lost. " This is all normal.

First of all, you have a horrible problem. It is called Anorexia. It is

considered a mental disorder. And you will be wrestling with it for the rest of

your life. But you will be able to live with it.

Let's focus on the basics first.

What is your daily Meal Plan?

What is your daily Exercise Plan?

What is your day-to-day Schedule?

.

Tara Winnett wrote:

I'm mad at myself. I know that I should not lose weight. I have been

calculating stuff on fitday and I've only been eating 1600-1700 calories,

including Betagen and UDOs capsules. I have been hovering between 116 and 118

pounds. I know that I should probably weigh more. I know that to gain muscle I

need to gain weight, but I'm just so afraid of adding calories. I'm so scared

that I'm going to gain a bunch of weight very quickly. How can I be staying the

same and even gaining by eating that amount of calories? I eat almost the exact

same thing every day b/c of afraid that I'll go out of control with eating and

binge or gain weight b/c of adding calories. I know this is hurting me. My

hair is thin and dry, my skin is dry, my nails are purple and peeling, I keep

getting hurt, and I'm tired all of the time. What can I do to snap myself out

of this? All I seem to think about is what and when I'm going to eat, figuring

out protein/carb ratios. I have to drag myself to the

gym, but I can't stay away. It makes me very anxious to think about skipping a

workout. I felt so guilty the other day for putting a wheat thin in my mouth

that I spit it out. I feel crazy. I just want to be healthy, but i know I'm

not. I'm tired of being obsessed. I've tried therapy, i was on antidepressents.

Nothing seems to help. Sorry. Just needed to vent. Sometimes just seeing it

written helps me out. I feel so shallow and selfish b/c I know so many people

have horrible problems. I just can't seem to stop thinking about exercise and

food. It controls me. it keeps me from goign out with people, even my

fiancee.It's interfering with how I do my job. I feel so lost.

---------------------------------

How low will we go? Check out Messenger’s low PC-to-Phone call rates.

[Guest guest]

,

My son has the same profile of your son. I try to rotate grains but he

doesn't really have an issue with wheat. I have suspected corn for a while. My

son cannot have any casein ever either, as well as a very long list of other

allergies. But I have not removed corn. It's hard to follow a lot of the

formal diets because he has so many allergies. My DAN says his menu is too

limited as it is. Did you see a difference in unreasonable fears when you

removed the corn? My son's unreasonable fears have increased way too much over

the last 1 1/2. Thanks,

>From: nwvwm <nwvwm@...>

>Date: Thu Apr 27 22:22:29 CDT 2006

>EOHarm

>Subject: Re: Re: Help

>hi Haven,

>

> Your son sounds a lot like mine was.

> I know what you are talking about when you say he can act like a cornered

anima l - like a psychosis comes over them.

> We have found that we had to deal with the allergy situation before we could

actually see the results from chelation and supplements. After a lot of trial

and error we found that corn (maize) and any of its products including dextrose

were very bad for him -- incidently he is okay with wheat, but not dairy. I

wonder if this has anyting to do with liver damage possibly caused by mercury

(e.g.the methyoation/metallathionien process) in that could it disrupt the way

it handles glucagon and therefore blood sugar regualtion - making dextorse a

problem??  I bet so many physiological process are disrupted by mercury and

heavy metals and it takes time for the chelation to allow them to get back into

balance - so minimizing some of the fallout/cascade effects from those (like

allergies) really helps. But still,even  these are dealing with symptoms of the

original problem,but make life so much better.

>

> Anyway, try keeping him off any corn product (corn starch, modified starch,

corn syrup, high fructose-glucose syrup, xanthan gum (it is derived from corn),

dextrose, and probably dextrin and maltodextrin.

>

> And admiraiton to you for having the courage and sensibility to know what

you see, act on it and for taking your son off of those steroids!!!!

>

> Best to you and your family,

>

>

>

> PS: forgive my typing errors - it is late at night and I just had to respond

to your letter.

>

>Haven <horses@...> wrote: Thank you so much for

your kind words.  Yes, We have been seeing different DAN! doctors since all

this started.  First we saw Amy Holmes, and she helped us a lot.  The DAN! we

see now is also an allergist and immunologist, but he really isn't giving us

concrete answers to this situation, and he also suggested that Ethan take the

steroids.

> I cannot deal with him on steroids!  It makes him crazy.  It breaks my heart

to see the kind of child steroids turn him into.  He is usually a very loving,

happy, affectionate, high functioning child who pretend plays all the time and

has a sense of humor and loves to make people laugh.

> Steroids seem to turn him into a rather paranoid individual.  When we were

in that bathroom he behaved like a cornered, wild animal.  It just was breaking

my heart because I couldn't reason with him or calm him down and get him over

that fear.</div> <div><br></div> <div>I think the doctor suggested diabetes

due to the excessive urination yesterday and the elevated heart rate, but I

think his anxiety was the cause for the heart rate.  I have no clue as to why

he said my son was obese.  No one who looks at him would think he is obese.

 He does have the distended belly that so many autistic children have.  </div>

<div><br></div> <div>We saw his regular doctor today.  She is not a DAN!

physician, but she is a holistic D.O. and I was lucky to find such an open

minded practitioner.  She has helped me with my own health immensely.  She has

helped our son too.  the only reason I went to these other doctors over the

past couple of weeks is because our DAN! doc and the regular doc were both

booked solid and we couldn't get an appointment.  

> Our DAN! doc just hasn't been really helping Ethan much lately.  The

transdermal chelation just hasn't worked for Ethan.  We had better luck with

suppository.  We are going to do a challenge test with that again once we get

him well.  

> Ethan's family physician told us today that Ethan IS NOT obese and he tested

negative for diabetes, but she said if we kept giving him steroids the way that

other doc wants us to, he could well wind up with diabetes.</div>

<div><br></div> <div>She feels that Ethan's nasal and respiratory condition is

due to an overgrowth of fungus and she told us to put him on an anti yeast diet

and put him back on Nystantin pronto.  I think what she says makes sense since

he has been on so many rounds of antibiotics for the last couple of months.  

> He was all ready SO much better today after having gone twenty-four hours

without any steroid.  He is coming back.  Today was so much better!  The people

at this family clinic have known my son since he was two.  He still wouldn't go

into the public bathroom there.  They were understanding, so they let him pee

in the cup in the exam room for the urinalysis.

> Thanks again for your kind words.

> Haven

>

>

>

>

>

> Enrich your life at Canada Finance

>

>

[Guest guest]

" Tara Winnett " twinnett001@... wrote:

> I just can't seem to stop thinking about exercise and

> food. It controls me. it keeps me from goign out with people, even my

> fiancee.It's interfering with how I do my job. I feel so lost.

me too. I often have thought that I would be so disappointed to see on my

gravestone, " Here lies Etana, who finally successfully lost weight. " What a

small accomplishment to spend my whole life's energy on.

Maybe you need a passion, a hobby that is just yours, (other than children).

For example, I have been dealing with why is my attention on food rather than on

being an artist?

HTH,

Etana

[Guest guest]

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[Guest guest]

Google: NPR:Author Pollan:'The Omniovore's Delemma "

Pollan says we are the corn people.

Our entire national economy is based on corn. Corn that we

hybridize,

fertilize and treat w/various chemicals as it grows. Then we proceed

to take the corn & break it down into its components. Companys then

call it " added value " which I doubt.

Pollen says if you test our hair you will find that we are composed

of

corn.

The food of today is far different than the foood of 50 years ago.

Will we understand what we have done, or will we be too sick soon?

Our

civilization may end like the Roman civilization who drank water

from

their lead pipes.

After listening to this peice, it rocked my world. Look at every

label, rethink every process that happens to the food supply. Not

only

might we look to The Amish Mennonites for answers about vaccine but

look to

how they grow their food and eat it very fresh.

[Guest guest]

Tara -

I'm not educated to know the right things that you need to help break your

patterns. But I do know that, aside from your food issues, you have an

upcoming wedding - which can be very stressful.

Can you tell us a bit about your non-food related life?

Do you work 9-5? Is it routine or stressful?

What do you do for yourself that is not related to food?

Do you have hobbies or activities that you enjoy?

What are your days like, M-F? And Sat/Sun?

Which family members, in particular, tell you that you are " gross " ?

Do you live with family, or are you on your own?

I know your fiance would like you to eat 'normally' (as you would like

too); is he loving and kind about your issues?

In other words, I don't want to hear about your calories and exercise. I

think you have that well under control (if anything - too

controlled!). I'd like to know what your non-body related actvities and

goals are.

n

At 11:21 AM 4/28/2006, you wrote:

>Thank you. I wish I could be as nice to myself as I am to others, but I

>know most women have that problem. My family just keeps telling me how

>gross I look. I used to be a binge eater, and I still have that urge if I

>eat anything unclean. It makes me just want to fall off the wagon.

>Professional help did nothing for me. I think my therapist had a disorder

>herself.

[Guest guest]

ORAL CHELATION IS MUCH SAFER.

Sincerely,

H.H. Fudenberg, M.D., D.D.G., I.O.M.

226 Edgewater Road

Inman, SC 29349

864-592-8076

nitrf@hotmailcom

From: "Herman Fudenberg" <nitrf@...>Reply-EOHarm To: EOHarm Subject: Re: Re: HelpDate: Fri, 28 Apr 2006 05:16:13 -0400

we have oral chelation

Sincerely,

H.H. Fudenberg, M.D., D.D.G., I.O.M.

226 Edgewater Road

Inman, SC 29349

864-592-8076

nitrf@hotmailcom

From: Haven <horses@...>Reply-EOHarm To: redhead60707 <EOHarm >Subject: Re: Re: HelpDate: Thu, 27 Apr 2006 22:00:15 -0500

Thank you so much for your kind words. Yes, We have been seeing different DAN! doctors since all this started. First we saw Amy Holmes, and she helped us a lot. The DAN! we see now is also an allergist and immunologist, but he really isn't giving us concrete answers to this situation, and he also suggested that Ethan take the steroids.

I cannot deal with him on steroids! It makes him crazy. It breaks my heart to see the kind of child steroids turn him into. He is usually a very loving, happy, affectionate, high functioning child who pretend plays all the time and has a sense of humor and loves to make people laugh.

Steroids seem to turn him into a rather paranoid individual. When we were in that bathroom he behaved like a cornered, wild animal. It just was breaking my heart because I couldn't reason with him or calm him down and get him over that fear.

I think the doctor suggested diabetes due to the excessive urination yesterday and the elevated heart rate, but I think his anxiety was the cause for the heart rate. I have no clue as to why he said my son was obese. No one who looks at him would think he is obese. He does have the distended belly that so many autistic children have.

We saw his regular doctor today. She is not a DAN! physician, but she is a holistic D.O. and I was lucky to find such an open minded practitioner. She has helped me with my own health immensely. She has helped our son too. the only reason I went to these other doctors over the past couple of weeks is because our DAN! doc and the regular doc were both booked solid and we couldn't get an appointment.

Our DAN! doc just hasn't been really helping Ethan much lately. The transdermal chelation just hasn't worked for Ethan. We had better luck with suppository. We are going to do a challenge test with that again once we get him well.

Ethan's family physician told us today that Ethan IS NOT obese and he tested negative for diabetes, but she said if we kept giving him steroids the way that other doc wants us to, he could well wind up with diabetes.

She feels that Ethan's nasal and respiratory condition is due to an overgrowth of fungus and she told us to put him on an anti yeast diet and put him back on Nystantin pronto. I think what she says makes sense since he has been on so many rounds of antibiotics for the last couple of months.

He was all ready SO much better today after having gone twenty-four hours without any steroid. He is coming back. Today was so much better! The people at this family clinic have known my son since he was two. He still wouldn't go into the public bathroom there. They were understanding, so they let him pee in the cup in the exam room for the urinalysis.

Thanks again for your kind words.

Haven

[Guest guest]

Thank you for taking the time to inquire about my actual life n! I will get

back to you when I have the time to really think about your questions. They

really have made me think about what I " m doing that isn't related to diet and

exercise.

n wrote: Tara -

I'm not educated to know the right things that you need to help break your

patterns. But I do know that, aside from your food issues, you have an

upcoming wedding - which can be very stressful.

Can you tell us a bit about your non-food related life?

Do you work 9-5? Is it routine or stressful?

What do you do for yourself that is not related to food?

Do you have hobbies or activities that you enjoy?

What are your days like, M-F? And Sat/Sun?

Which family members, in particular, tell you that you are " gross " ?

Do you live with family, or are you on your own?

I know your fiance would like you to eat 'normally' (as you would like

too); is he loving and kind about your issues?

In other words, I don't want to hear about your calories and exercise. I

think you have that well under control (if anything - too

controlled!). I'd like to know what your non-body related actvities and

goals are.

n

At 11:21 AM 4/28/2006, you wrote:

>Thank you. I wish I could be as nice to myself as I am to others, but I

>know most women have that problem. My family just keeps telling me how

>gross I look. I used to be a binge eater, and I still have that urge if I

>eat anything unclean. It makes me just want to fall off the wagon.

>Professional help did nothing for me. I think my therapist had a disorder

>herself.

[Guest guest]

Tara -

The other related questions, which I've posed in the past and don't recall

seeing answers - are all related to this and your situation. Have you and

your fiance discussed the role of food in your family life?

- do your and your fiance intend to eat dinner together when you're

married? (Altho, it sounds like you're already living together; do you eat

dinner together now?)

- do you plan to eat dinner together as a family when you have children?

- will you eat the same food as the family?

- what would you serve if you were having friends over for dinner? What

about a bbq?

The answers may be less important than the discussion itself. And the

discussion (or lack thereof) may very well be affecting your sex-drive, and

your current mood.

Do you and your fiance belong to a church or other religious

organization? Perhaps the two of you can seek counseling there. As

wonderful as this group is, it is probably wise for you to seek more

direct, professional help than we can possible provide. At the very

easiest level, please be sure to read The Pathway, by Laurel Mellin, as

suggested by Felicity.

You're in our thoughts

n

At 01:57 PM 4/29/2006, you wrote:

>Thank you for taking the time to inquire about my actual life n! I

>will get back to you when I have the time to really think about your

>questions. They really have made me think about what I " m doing that isn't

>related to diet and exercise.

>

>n wrote: Tara -

>I'm not educated to know the right things that you need to help break your

>patterns. But I do know that, aside from your food issues, you have an

>upcoming wedding - which can be very stressful.

>

>Can you tell us a bit about your non-food related life?

>Do you work 9-5? Is it routine or stressful?

>What do you do for yourself that is not related to food?

>Do you have hobbies or activities that you enjoy?

>What are your days like, M-F? And Sat/Sun?

>Which family members, in particular, tell you that you are " gross " ?

>Do you live with family, or are you on your own?

>I know your fiance would like you to eat 'normally' (as you would like

>too); is he loving and kind about your issues?

>

>In other words, I don't want to hear about your calories and exercise. I

>think you have that well under control (if anything - too

>controlled!). I'd like to know what your non-body related actvities and

>goals are.

>

>n

>

>

>At 11:21 AM 4/28/2006, you wrote:

> >Thank you. I wish I could be as nice to myself as I am to others, but I

> >know most women have that problem. My family just keeps telling me how

> >gross I look. I used to be a binge eater, and I still have that urge if I

> >eat anything unclean. It makes me just want to fall off the wagon.

> >Professional help did nothing for me. I think my therapist had a disorder

> >herself.

[Guest guest]

Steve,

Thanks for writing again. It always helps to hear from other parents, especially from a parent whose child is the same age.

We put Ethan back of the Nystantin, so he is stimming a lot, I think from die off.

One major problem is remaining from his being on the prednisolone. I had him where he would go in just about any public bathroom with me so long as I reassured him. But now he won't go in any bathroom but at home! I had to pick him up at ten thirty on Friday from school because he wouldn't use the school bathroom! Now, part of the problem may have been that his dad dressed him in pants that I swear were three sizes too small. Ethan couldn't get them unbuttoned and I think he was too afraid or didn't know how to ask his teacher for help.

They called me and said he was holding himself, rocking back and forth and crying. I rushed up there to get him. We came home, and I even had trouble getting his pants unbuttoned. Boy, that poor kid needed to pee so bad! His dad took him to hire's today and Ethan asked to go to the bathroom there, but then wouldn't go in. What am I going to do if he still won't go in the school bathroom on Monday? I refuse to put him back in a pull up for fear I could never get him potty trained again!

I won't say that I will never use prednisolone again, but I'm certainly NOT keeping him on steroids twice a day every day as was suggested to us.

Since we put him back on Nystantin, his cough has gone away and his nose is better. I'm inclined to believe our D.O. is right and Ethan's respiratory problems were stemming from fungal overgrowth.

Ethan is on pretty much on the same supplements as your son , except for the TD DMSA. We tried both TD DMSA and TD DMPS and we just didn't get much out. We are going to try a suppository this go round and see if we do better.

Take care and God bless. I will be praying for your son.

Haven

[Guest guest]

Yeah, food is a tough issue. Right now, we usually eat separate things. I cook

for him and our roommate and make something else for myself. I'd like to have

family dinners in the future. We just got back from dinner actually. We usually

don't go out, but it was nice. I had a salad, which is what I usually do.

n wrote: Tara -

The other related questions, which I've posed in the past and don't recall

seeing answers - are all related to this and your situation. Have you and

your fiance discussed the role of food in your family life?

- do your and your fiance intend to eat dinner together when you're

married? (Altho, it sounds like you're already living together; do you eat

dinner together now?)

- do you plan to eat dinner together as a family when you have children?

- will you eat the same food as the family?

- what would you serve if you were having friends over for dinner? What

about a bbq?

The answers may be less important than the discussion itself. And the

discussion (or lack thereof) may very well be affecting your sex-drive, and

your current mood.

Do you and your fiance belong to a church or other religious

organization? Perhaps the two of you can seek counseling there. As

wonderful as this group is, it is probably wise for you to seek more

direct, professional help than we can possible provide. At the very

easiest level, please be sure to read The Pathway, by Laurel Mellin, as

suggested by Felicity.

You're in our thoughts

n

At 01:57 PM 4/29/2006, you wrote:

>Thank you for taking the time to inquire about my actual life n! I

>will get back to you when I have the time to really think about your

>questions. They really have made me think about what I " m doing that isn't

>related to diet and exercise.

>

>n wrote: Tara -

>I'm not educated to know the right things that you need to help break your

>patterns. But I do know that, aside from your food issues, you have an

>upcoming wedding - which can be very stressful.

>

>Can you tell us a bit about your non-food related life?

>Do you work 9-5? Is it routine or stressful?

>What do you do for yourself that is not related to food?

>Do you have hobbies or activities that you enjoy?

>What are your days like, M-F? And Sat/Sun?

>Which family members, in particular, tell you that you are " gross " ?

>Do you live with family, or are you on your own?

>I know your fiance would like you to eat 'normally' (as you would like

>too); is he loving and kind about your issues?

>

>In other words, I don't want to hear about your calories and exercise. I

>think you have that well under control (if anything - too

>controlled!). I'd like to know what your non-body related actvities and

>goals are.

>

>n

>

>

>At 11:21 AM 4/28/2006, you wrote:

> >Thank you. I wish I could be as nice to myself as I am to others, but I

> >know most women have that problem. My family just keeps telling me how

> >gross I look. I used to be a binge eater, and I still have that urge if I

> >eat anything unclean. It makes me just want to fall off the wagon.

> >Professional help did nothing for me. I think my therapist had a disorder

> >herself.

[Guest guest]

Ok....here goes

Can you tell us a bit about your non-food related life? I'm a music teacher,

teaching grades 2-7. I'm very close to my family. I love to read and watch

movies. I have a big dog and I love to shop.

Do you work 9-5? Is it routine or stressful? A bit of stress, esp. now w/ all

the concerts and programs

What do you do for yourself that is not related to food? Not much time for

anything besides coming home, walking the dog, cleaning up, making dinner,

packing my meals for the next day, eating, and by then it's time for bed.

Do you have hobbies or activities that you enjoy? I like to read and watch

movies and television when I have time. I love to cook and bake and I like to

shop.

What are your days like, M-F? And Sat/Sun? M-F- up at 5, to the gym, then off

to work On sat. and sun, usually at the gym for awhile, then relax or do wedding

stuff, walk the dog, go grocery shopping, go to a movie with my best friend,

take a nap, clean the house, etc.

Which family members, in particular, tell you that you are " gross " ? My mom

and dad think I am too skinny and they want to see me like I used to be. My

fiancee would also like me to gain around 20 pounds, but he has stopped making

any comments. Everyone around me is sick of hearing about health.

Do you live with family, or are you on your own? I live with my fiancee and

one of his friends, who will hopefully be moving once we're married!

I know your fiance would like you to eat 'normally' (as you would like

too); is he loving and kind about your issues? My fiancee is not a sensitive

person and he just gets frustrated b/c he feels like there's nothing he can do,

so he basically ignores it now. If I mention anything about food or weight, he

changes the subject. He hates me working out and tells me that I choose the gym

over him.

In other words, I don't want to hear about your calories and exercise. I

think you have that well under control (if anything - too

controlled!). I'd like to know what your non-body related actvities and

goals are. I have been so focused for so long on food and exercise, I don't

even know what I want anymore! I'm not really happy with my job and I don't feel

good about what I look like. I don't know why I keep striving for the " perfect "

body. I don't feel like I'm good at anything I do. I am kind of lonely. I have a

hard time making close friends b/c I'm shy.

n wrote:

Tara -

I'm not educated to know the right things that you need to help break your

patterns. But I do know that, aside from your food issues, you have an

upcoming wedding - which can be very stressful.

Can you tell us a bit about your non-food related life?

Do you work 9-5? Is it routine or stressful?

What do you do for yourself that is not related to food?

Do you have hobbies or activities that you enjoy?

What are your days like, M-F? And Sat/Sun?

Which family members, in particular, tell you that you are " gross " ?

Do you live with family, or are you on your own?

I know your fiance would like you to eat 'normally' (as you would like

too); is he loving and kind about your issues?

In other words, I don't want to hear about your calories and exercise. I

think you have that well under control (if anything - too

controlled!). I'd like to know what your non-body related actvities and

goals are.

n

At 11:21 AM 4/28/2006, you wrote:

>Thank you. I wish I could be as nice to myself as I am to others, but I

>know most women have that problem. My family just keeps telling me how

>gross I look. I used to be a binge eater, and I still have that urge if I

>eat anything unclean. It makes me just want to fall off the wagon.

>Professional help did nothing for me. I think my therapist had a disorder

>herself.

[Guest guest]

Haven,

Thanks for writing back. Yah, sometimes us dads can really screw

things up, but don't we all now and then. Tell your husband, that I

put my kids shoes on the wrong feet when he was three and sent him off

to school. Oooooh that wasn't a good day to talk to my wife.... My

wife has about 20 that she reviews every day. This is

the only one for me.

Anyways, I had a great day at the TACA meeting today in Costa Mesa,

CA. Kirby and Dr Jerry Kartzinel both spoke. Dr Jerry is a

DAN! doctor from ThoughtfulHouse. They were both great. Thanks

Ackerman--you rock. I missed most of 's presentation - that was

my wife's fault..... see it evens out. But got a chance to ask him a

question to prompt him to speak about how the World Health

Organization is continuing to disregard the risks of using thimerosal

laden vaccines into third world countries. I have two brothers with

kids with autism, and I just found out I also have a cousin who has a

child with autism. Perhaps there is a good genetic study I should get

me and my extended family involved in. One of my brothers lives in

Nairobi, Kenya and his three year old son was diagnosed about a year

ago. This could have been prevented.

At lunch they also had the International Hyberbarics Association(sp?).

spokesperson () gave a great testimonial about hyperbarics.

She will also be on the Montel show at 2PM Monday PST. We

want to try hyperbarics now. It looks like they are finally getting

down a better protocol for using hyperbarics - Start slow and have it

done at a clinic for the first dozen of so times before you buy a

flexible one and do it at home. Plus, there are lots of other things

you may want to do to prep for using it by using the proper supps,

antioxidants,,,,,. And also do this as an adjunct to the normal

therapies, biomedical.... that you are currently doing. The only

downside is that is expensive, but there are some good studies going

on now that if successful could provide peer-reviewed, replicated

studies - which could help justify it to insurance over time. We will

wait for a few more TD-DMSA rounds and then start on LDN for a while,

before we may want to start -- if we can find a way to afford it.

Haven, best of luck with everything.... I may be out of touch for a

while - work is reshuffling me and I'll probably have my head down for

a while .....

God Bless you and yours.....I'll say a prayer for you guys too...

Steve

[Guest guest]

Hi Tara,

It's true...we list members all care about one another

I hope you are basking in that circle of cyber friendship.

Having been an elementary teacher for 12 years, I know many of the

challenges that come with a teaching career. I give you a LOT of

credit for juggling all you do.

I know what it's like to have heavy relatives. They just don't

understand my food and recreation choices.

I also know I was more comfortable in my body for the years I was in

the 130-140 range than when I was in the 160-200 range. Many of my

friends and relatives have a blind spot regarding my weight. They

" think " I have always been the size I am now. FUNNY (As of this

morning I am 155 and heading toward the fit 140 range. I'm 5'8 " )

I have to dismiss their opinion and look into myself for my own goals.

MANY of the women on the Body Changer transformations have said they

had similar situations of struggling to find support for their body

goals. Most started carrying their worst " before " photo in their

purse to whip out when necessary

Check out this one; http://www.bodychangers.com/pcreswell_inter.shtml

The guy I was engaged to 3 times was also really into my baking pies

and cakes, while he was pushing for me to get to a lower body fat level.

Now, the guy I married actually turned down the first banana cream pie

I made for him without even tasting it, saying, " No thanks, I am not

really into desserts. " (He didn't have a clue, but that sentence was

a BIG green light for our budding romance

I would encourage you to think long and hard about the wedding plans.

No rush, you know...Call it a longer engagement if you want.

Meanwhile, get to a yoga class, a martial arts class, or make a lot of

new friends at your local gym. Go to the places where the lean/fit

men are. There are a lot of guys who are totally turned on by a LEAN

and STRONG woman. They have healthy active friends and healthy active

lifestyles. Hey, some of them are even wealthy If you want to get

the word out to the staff you work with, that you are interested in

meeting a great guy with a " fitness " lifestyle. It won't be long

until you do.

I personally chose to live more than a couple hours away from my

extended family in order to reduce the ongoing stress of the

conflicting lifestyles...many are chip eating couch potatoes, while

my dh and I prefer steamed veggies, lean proteins and lots of outdoor

recreation

I am really GLAD I match with my spouse on these key issues, but I

wasn't lucky...I made very conscious decisions about who I wanted to

share my life with.

I once read; " Be careful who you marry as 70% of ALL you future joys

and sorrows will come from that one decision. "

I would agree.

I would push " pause " on the wedding plans and see how you feel next

year. What would be the best case...worst case?

Great book... " Any Woman Can " on the topic of a happy marriage.

If you are happy in your body, enjoy it.

-

Hugs,

M.