Guest guest Posted March 16, 2000 Report Share Posted March 16, 2000 Thanks for checking. Yes, a babinski is a sign of neuro damage, but most docs are so freaked with a kid like Jen (because they are scared to say they do not know) that they fill in the gaps. I am very worried about AAI. Her 3 y/o xray was positive for AAI, but the next year was negative, but they are very unreliable for AAI. There are nice docs, but they seem to be less knowledgeable and less willing to order the big tests. Kara At 11:12 PM 3/15/2000 -0500, you wrote: >From: MIDVALE <Midvale@...> > >We all know why SOME dr. go intop the fields they go into - because basically they hate people who are not inert! > >Babinski - negative on my son. I thought this was a sign of neuro damage - not genetic defect like DS. One of the things we were told to watch for was a positive Babinski - IF the AAI ever becomes an issue . > >Think you are on the right track. aAre there no decent, compassionate, knowledgeable doc in Indiana? You and your DH will be much in demand. > >Sara > >>>> kawetzel@... - 03/15/0 10:52 PM >>> >From: kawetzel@... > >For anyone interested in doing me a HUGE favor and advancing the medical >knowledge of DS in less than 1 minute, read on. > >I need to find out if a " Babinski reflex " is something seen in kids with >DS. It is suppossed to be there at birth, but disappear at age one unless >there is some damage to the brain or spinal cord. Jen has been limping >since last week and has seen many docs who give us the run around. Friday >they found she had a Babinski sign, but were unsure if that was ok in DS (I >don't think it is, but couldn't find anything in the literature.) I think >she has what is termed AAI (too much space between the top 2 vertebra which >is common in DS, usually no symptoms but CAN be fatal or can cause symptoms >like 's). > >Here is what you do. Take your child's bare foot and hold it with one >hand. Take the blunt end of a pen or even your finger and apply moderate >pressure on the bottom of the foot starting at the heel and moving up to >the little toe in one motion. Did the toes fan out and the big toe goe >towards their head? That is the babinski sign. If the toes go toward the >heel, they do not have a Babinski. > >I would appreciate getting a handful of answers so that I can relax or get >really worried. None of the docs know. However, one neurologist told me > " you know, their brains aren't right to begin with " . Thanks Mr Sensitive >for that key piece of information. > >Thanks so much. > >Kara > >------------------------------------------------------------------------ >GET A NEXTCARD VISA, in 30 seconds! Get rates as low as 0.0% >Intro or 9.9% Fixed APR and no hidden fees. Apply NOW! >1/937/5/_/691668/_/953178960/ >------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2000 Report Share Posted March 16, 2000 Unilateral is strange. Yes, that is why they do the neck xrays. To check for AAI. AAI is normally not serious in the 15% of kids with DS, but if they are symptomatic, it means pressure could be on the spinal cord. That area of the neck is where superman broke his neck; serious stuff. One sided may mean something is going on on one side of his neck, but are there other symptoms? Dr Leictman told me yesterday a babinski alone doesn't mean much. Kara At 11:37 PM 3/15/2000 EST, you wrote: >From: smilinggail@... > >Kara, >Never heard of that before. I just did it to Seth and it's weird! On his >left foot the toes go down and his right foot they go up! Can you explain >again what causes it and what it does to you? Is that why Seth gets his neck >x-rayed for space in the vertebrae? > >Gail, Mom to Seth(4) jo(7) (9) (22) (24) grandma to >Errick(4) and wife to (my hero) > >------------------------------------------------------------------------ >GET A NEXTCARD VISA, in 30 seconds! Get rates as low as 0.0% >Intro or 9.9% Fixed APR and no hidden fees. Apply NOW! >1/937/5/_/691668/_/953181448/ >------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2000 Report Share Posted March 16, 2000 Matt's babinski is negative. Didnt' even splay out his toes. He seems to be wired backward, tho. He is tickelish on his back much more than on his tummy, and he enjoys having the palms of his hands and the soles of his feet deeply rubbed. S ________________________________________________________________ YOU'RE PAYING TOO MUCH FOR THE INTERNET! Juno now offers FREE Internet Access! Try it today - there's no risk! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2000 Report Share Posted March 16, 2000 Kara, We've tried this on both of Tanner's feet.....one has Babinski and one doesn't! So what does that mean???? Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2000 Report Share Posted March 17, 2000 I didn't get much of any response on either of 's feet, although the big toe did curl in on the right one on a second try. was x-rayed last year for AAI, in fact twice, because the first x-rays indicated a possibility of AAI, but the second more detailed set showed he didn't have it (may have just moved during the x-ray). Carole Re: help > From: gldcst@... > > OK Kara I tried this on . Used her right foot and got a babinski > reflex! the first time. Then I tried her left foot ~ nothing. Went back > to her right foot ~ nothing. Well, we all know is a wee bit odd:)) > Sherry > > > ------------------------------------------------------------------------ > PERFORM CPR ON YOUR APR! > Get a NextCard Visa, in 30 seconds! Get rates as low as > 0.0% Intro or 9.9% Fixed APR and no hidden fees. > Apply NOW! > 1/2121/5/_/691668/_/953224114/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2000 Report Share Posted March 17, 2000 Kara, i went through and checked all the kids this morning. -yes, JJ -no, Tim-no, Essie-yes, Sam would not let anyone touch is feet! Interesting enough and Essie have a 3mm(?) seperation. JJ and Tim have none. Dr. Leightman said it is " within normal limits " if it is less than 5. & Garry, parents of (9), (8), JJ (6), (5), and Esther (3). All adopted & with Down Syndrome. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2000 Report Share Posted March 17, 2000 hehe nancy, i can just see you trying to get at five kids feet..heheh leah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2000 Report Share Posted March 30, 2000 Easy boy! Don't get upset! PLANNING your meals helps set you up for success. When you've been faithfully planning in advance for a while, you can eventually stop writing it all down. When I tried to stop writing everything down too soon, I stopped eating RIGHT. I realized that I needed to write it down to help remember and analyze what I ate and when. Eventually you can do it without writing it down. As for training MORE than what the program suggests, I tried that too. It leads to burnout very quickly and it is not necessary. Have you listened to bills audio tapes? Overtraining can actually be harmful. I am not great YET at explaining the science behind why, being only 8 1/2 weeks into my first challenge so maybe some of our seasoned experts can help us out on that. As for Cardio on weight training days, I think the best results will come from doing the cardio. first thing in the a.m. after an overnight fast and don't eat for an hour afterwards to take advantage of the afterburn. You burn up to 30% more FAT that way. If you have to do your weights the same day, I am of the opinion that you need to get some protein in your body first. OK group. This is my first effort at trying to answer questions for those who are newer to the program than me. How did I do? Please feel free to make any corrections! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2000 Report Share Posted March 30, 2000 Hi Jami, No I don't think there is any initiation....you just have to throw yourself in. This is my answer to your questions. Q. Is it ok to do cardio on weight-training days? A. No. Q. Is it ok to do more than 20 minutes? A. No. Q. Do you really have to write out every day what you're going to eat the next day? A. Yes. OK I have answered your questions very briefly and based upon the info supplied in Bill 's book. However you should know that these answers are only applicable if you want to follow the BFL lifestyle and you want to achieve success in a Challenge. You can actually do whatever you choose - you can modify the program in any way that you desire to suit your lifestyle, but then you have to accept the results of your own plan. BFL is thoroughly researched and proven to work if you stick to it. Years of trial and error have been condensed into this program so the risk is taken out of it. I think everyone on the program makes their own modifications to suit their own particular body, but it's best to stick within the basic guidelines until you can 'read' your body. For instance, I no longer write out what I will eat tomorrow - but I can tell a balanced meal from 20 paces. Others modify their exercise plan once they get into the fine tuning stage but I think you'll find most of us pretty much stick to the plan as outlined in the book. Sorry you didn't get answers sooner and hopefully you will get some more since obviously this is just my opinion. Good luck, Leaner. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2000 Report Share Posted March 30, 2000 Hi Gloe, Yeh I know you've been at this for almost 24 weeks straight now haven't you? Why do you think your second time wasn't what you were hoping for? Maybe you need to give yourself a break for a week after this challenge. What do you think? BTW Gloe, do you know when the final date for Round 3 admission is? And what are you up to now that you have decided not to continue with law? Questions questions...but don't feel you have to answer...it's not like your in the witness box LOL. Leaner. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2000 Report Share Posted March 30, 2000 Excellent - keep it up!! Leaner. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2000 Report Share Posted March 30, 2000 Well good luck in whatever you choose Gloe. You have invited so many people into this group which has not only helped us individually but collectively too. Thanks a lot... Leaner. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2000 Report Share Posted March 30, 2000 Ok, here are some clues. 20 minutes of cardio is best at the intensity level Bill recommends in his book. If you want to do more, fine, but lower the intensity. By doing more than 20 minutes of cardio at the rate Bill suggests, you will stop burning fat and begin burning muscle. Here is why. If you do your cardio on an empty stomach, usually first thing in the morning works best, your carbohydrate stores are depleted or very low. Doing high intensity cardio while your body is in this state forces it to use fat stores for energy. After 20 to 40 minutes of cardio your body will think it will have to go on like this forever and will store fat again and begin to burn muscle instead. As for weight training more than recommended, your body uses up its glycogen stores within 40 to 50 minutes of intense weight training and will begin to burn the muscle for energy at that point. As for writing everything down, it helps you to see what you are REALLY putting in your mouth. Everything that goes into your body has an effect. EVERYTHING! Now most of us have lives that include other things beside just eating and we tend to not put as much attention into how much or what we are eating at certain times of the day. By keeping a log you can see what foods help you to gain muscle and lose fat and what foods do not. And like was said before, once you get the hang of it you won't need to do that. But it sure helps if you want results. Good Luck. ~Laury Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2000 Report Share Posted March 30, 2000 Hi Jodi Sometimes I felt like I was getting ignored but then I realized that this group reads and sends tons of e-mails sometimes and it's not easy to get a response to everything. I did the BFL thing EXACTLY, but without the supplements for four weeks and I did GREAT! I lost 10 inches from all over, no clue as to bodyfat or muscle, but I looked really good. My waist was getting smaller and I could see definition all over my legs and arms. Then I decided to goof off (I have no idea why, I'm taking a class with a really interesting professor and he says sometimes you're afraid to succeed and maybe that threw me off) and I gaied a bunch of weight. My friend and I decided to begin the program again and this week I only did cardio except for today, when I did a great upper body workout. Next week I plan to write everything down again, get my six meals, and maybe add some cardio after work on days that I don't have evening classes. Hope this helps! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2000 Report Share Posted March 30, 2000 Thank you, thank you thank, you! Great responses. I see, so I just have to get a little assertive with you guys! Just kidding. Sorry, that's the Scorpio in me coming out. Anyway, I really appreciate it. Especially that link you sent, Kit. Great site. Another question...when using a bar as a meal replacement (and not a BAR, as in beer!), can it be one of those high protein, low carb bars, or should I stick to a more even balance? an aside: i met a friend tonight for sushi, and she said i looked like i'd lost weight. i hadn't even told her yet that i'm doing this program. and it's only been 1 1/2 weeks. that felt good! Have a good weekend. Jami <----female, btw Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2000 Report Share Posted April 15, 2000 In a message dated 04/15/2000 6:33:17 PM Eastern Daylight Time, Honeybear3899@... writes: << I can't Tae Bo cuz it would be too hard on m knee...anyone have any suggestions? >> Tae-Bo sitting down? you can still punch and lift your good knee I believe Tae-Bo Gold has sitting instructions You can also do upper body weights every other day (and suck in those abs!!!) Barb who hopes 's knee heals quickly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2000 Report Share Posted April 15, 2000 If you can walk, you should be fine. Walking isn't Taebo but it is one of the best exercises around. I love a good speedwalk outside. It is very invigorating and being outside is great. Walking also gives you time to relax your mind. I get some of my best thinking done when I am walking. Get some good shoes and go for it. ---who tries to walk 5 miles at least 2 times a week Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2000 Report Share Posted April 15, 2000 Honeybear3899@... wrote: > > I need help. I hurt my knee and cannot run for a month. I can't do anything > but walk and maybe swim. I am still having a horrible time losing weight, > and have gained a few pounds. I can't Tae Bo cuz it would be too hard on m > knee...anyone have any suggestions? I also got back into poor eating habits, > which I am trying my hardest to change again, but it is reall hard...any > advice would be great!!! Thanks! > > , I'm so sorry. You didn't need this on top of everything else. If I were to hurt my knee and had access to a pool, I would definitely start swimming regularly, using the kickboard, and maybe even do aqua aerobics. All of those things are low impact and should help strengthen your knee. Do you have a pool available at the base? Elena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2000 Report Share Posted April 15, 2000 > I need help. I hurt my knee and cannot run for a month. I can't do anything > but walk and maybe swim. I am still having a horrible time losing weight, > and have gained a few pounds. I can't Tae Bo cuz it would be too hard on m > knee...anyone have any suggestions? I also got back into poor eating habits, > which I am trying my hardest to change again, but it is reall hard...any > advice would be great!!! Thanks! , I'm so sorry to hear about your knee! Walking is great exercise....you can definitely continue losing weight by walking. Swimming is great, too...it is a great overall workout. Either one of those is a great way to stay in shape. You have been under extreme stress these past few weeks....try to be a little easy on yourself. You can get back on track. Don't beat yourself up over some bad food choices. Just make a real effort to get yourself back on track. You'll feel much better when you are taking care of yourself! You are in my thoughts and I hope you are doing ok. Take it one day at a time. Let go of what you didn't do yesterday and focus on what you CAN do today Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2000 Report Share Posted April 15, 2000 > Tae-Bo sitting down? > you can still punch and lift your good knee > I believe Tae-Bo Gold has sitting instructions > You can also do upper body weights every other day > (and suck in those abs!!!) , that is a great idea! You can still get a really great workout just from doing all the punches and stuff while sitting down. Even if you just step side to side instead of doing any of the kicking....substitute upper body stuff. If it hurts to even stand up...do it sitting down in a chair! whose biggest fear is that she will get injured and not be able to tae-bo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2000 Report Share Posted April 15, 2000 , I suggest you do upper body work from TaeBo and swim to work your legs. Take it a day at a time. I'm sorry your going thru this. Hugs, F ;-) > I need help. I hurt my knee and cannot run for a month. I can't do anything > but walk and maybe swim. I am still having a horrible time losing weight, > and have gained a few pounds. I can't Tae Bo cuz it would be too hard on m > knee...anyone have any suggestions? I also got back into poor eating habits, > which I am trying my hardest to change again, but it is reall hard...any > advice would be great!!! Thanks! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2000 Report Share Posted April 16, 2000 > > > > I need help. I hurt my knee and cannot run for a month. I can't do anything > > but walk and maybe swim. I am still having a horrible time losing weight, > > and have gained a few pounds. I can't Tae Bo cuz it would be too hard on m > > knee...anyone have any suggestions? I also got back into poor eating habits, > > which I am trying my hardest to change again, but it is reall hard...any > > advice would be great!!! Thanks! > > ! Hi! What about Pilates--I have Only Tried this The Once,And the Pace Bored me!{not a GREAT Advert Am I? } But! It would carry on Developing your muscles-espescially the deep Ones! Just a Thought Hope you Feel Better and Mend your knee very soon, Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2000 Report Share Posted April 16, 2000 I have a Pilates machine and I love it. It is not a good cardiovascular workout, but it really does help you tone-up. I would try this with walking. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2000 Report Share Posted April 16, 2000 In a message dated 4/15/00 1:22:02 PM Hawaiian Standard Time, etcarroll@... writes: << Do you have a pool available at the base? Elena >> Actually I have a pool at my apartment complex, though it is not heated, it will do!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2000 Report Share Posted April 16, 2000 n a message dated 4/15/00 5:33:14 PM Central Daylight Time, Honeybear3899@... writes: << I need help. I hurt my knee and cannot run for a month. I can't do anything but walk and maybe swim. I am still having a horrible time losing weight, and have gained a few pounds. I can't Tae Bo cuz it would be too hard on m knee...anyone have any suggestions? I also got back into poor eating habits, which I am trying my hardest to change again, but it is reall hard...any advice would be great!!! Thanks! >> I'm sorry to hear about your knee. You know when you are at home watching TV you can still throw some jabs and do some speed backs. Also do not forget the power of muscle isolations. When you can contract your abs....do three sets of ten several times a day and try to hold them in whenever you think about it. Do the same thing for you gluteaus maximus, your calf muscles your arms etc. and Get ye to a pool. I think it would probably be better than walking as it is a non-weight bearing exercise. Walk the length of the shallow end several times for a warm up. Then stretch ouyt in the pool the best you can without drowning. Then try swimming a couple of laps free style. Go back to the shallow end. Do some lunges...if the dont hurt. Then, grab on to the side of the pool and do fluteer kicks for two minutes. More walking. Swin another two laps...underwater if you can. Throw Find a level of water that your shoulders and arms are underneath but your head is above and your feet are touching the bottom. Throw some punches. Do some arm circles. Lift up your legs and tread water for two minutes. Go back and wade through the shallow end some more. Finsh off with five to ten strong laps. I also suggest you try to find a book on water aerobis or workouts. Many will suggest you incorporate a sports ball (the 99 cent light weight type you get in the grocery store for children). IT is so much fun if you can do that...but it can be a little embarressing if anyone is around. A good portion of the workout has you squeezing the ball between you legs as you try to balance yorself in the pool. It did my thighs good when I use to do it. After you pool workout go home and do some ab work, push ups on your knees. Try doing lying leg raises. As far as the diet goes...I hear you girl....I have been horrible. The grocery store was out of sun dired tomatoes the time before last and that is my new favorite snack...so I snacked on less healthy things...well they have sun dried tomatoes againw hich I am eating along with my unhealthy stuff....I guess I got the sugar in my bloodstream and on my mind and I can't get it out. Plus I LOVE easter candy. Combine that with the fact that I have been sick these last two weeks and I am a binge machine I never really advocate fasting diets...or low cal, shake diets...but I hagve noticed if that I spend two to three days over analyzing what I eat and being extra healthy...by the fourth day I really don't want potatoe chips and chocholate anymore and I don't have to worry about it until...something sneaks past my lips and I give in again. I think its almost like a sugar detox period that I have to go through. I will do it again AFTER EASTER. I bought a ton of weight watchers deserts to help hold me over...hee hee. I will be moderatly good this week...but I knw " detoxing: would be hopless with easter one week away and me being at the chocholate " Time " of the month. Hope you heal fast. Quote Link to comment Share on other sites More sharing options...
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