Re: electric volt-like pains in toe

[Guest guest]

Has anyone experienced electric volt like pains in their big toe? Wow! All of a

sudden beginning yesterday, I have these pains that come and go in my big toe.

When they hit it feels as if electricity struck or a spider bit my toe. Really

weird. They do not last long but have continued on and off now for 24 hours.

The pain stops me dead in my tracks and then leaves just as quickly. It seems

to me that it would be a nerve issue. Any suggestions??????????

Karon

[Guest guest]

I had similar symptoms when I had a herniated disk in my back. You

might want to get that checked by your general doctor. Pinched

nerves are not fun.

[Guest guest]

I constantly had those electrical shooters when my CMT first began still

getthem somedays I think the Neurontin helps those.....

[Guest guest]

Karon

I have had these pains regularly. They started in my toes, now they are in

my calves of my legs. My neurologist told me this was a sign my nerves were

suffering and possibly dying which he says is all part of the CMT process.

Neurontin helps relive these pains but not the accute ones that hit me. I

learned to breathe through them just like you breathe through labor pain. Self

hypnosis is very helpful too.

Cathleen in Arkansas

[Guest guest]

Karon,

I get the same thing. Especially at night when I'm trying to fall asleep. It

definitely feels like a spider bite. Ouch!

A.

[Guest guest]

I get electrical pains like this from time to time and just chalked it up to a

CMT

symptom. It sounds a little weird, but what it always reminds me of is the old

episode

of Gilligan's Island where the voodoo man had the dolls made for each person on

the

island and he stuck pins in the bottoms of feet of Gilligan's doll. The pin

sticking

made Gilligan jump and sort of dance around in pain. Not sure if any of you

remember that episode, but every time I have that 'pin sticking' nerve pain I

always

think 'someone's working on my voodoo doll'. :-)

For me the pains don't come very often, maybe once a month or so, but they

always

occur multiple times. I'll be sitting there and have a sharp jabbing pain in my

foot

that lasts a few seconds and then it goes away only to return a minute or so

later.

When I was on Neurontin it never seemed to help the electrical pains....

~

[Guest guest]

I found that these shooting pains in the toes started if my feet were the

slightest bit cold. As I said previously my CosySoles heated slippers have

really helped this problem. now I can sleep at night. It used to be like

torture all night long. For all members with CMT wishing to order CosySoles

we will offer a special discount of $10 off the Regular price. Website:

www.cosysoles.ca

Warmest Regards,

[Guest guest]

Thanks . Thank goodness the pain goes away! I haven't experienced it

since last weekend. Let's hope it stays gone a long time.

Karon

[Guest guest]

That's interesting . I thought it was probably a nerve pain. Makes

sense that it is deterioration...............my feet are really wasting away.

karon

[Guest guest]

A.,

It sure does! Wish it were spiders...........I can make them disappear for

good!

Karon

[Guest guest]

I get the same thing and you hit it on right on the nail about Gilligans Island.

It nearly makes me jump out of my skin. I am new to this cmt site.. It is

really nice having this message board and people having the same things wrong

with them. Well Got to go .. Sister is here from Arizona (I am in Florida) :')

Anicevoice

[Guest guest]

So far, the metaphor has been either an electric shock or a spider

bite. Maybe it's because I've never been bitten by a spider, but I find

it more a shock. In fact, I always described it as something like being

touched by a cattle pod--usually twitch involuntarily and unfortunately

waking my wife. And yes, they always seem to come in multiples, and

always when I am asleep. After the first, it is like waiting for the

next boot to drop, as there are always at least 3 or 4.

Does anyone have any definitive explanation for these?

Jack

[Guest guest]

Jack,

Someone posted that the shocks happen because it is the foot nerves' last

attempt to charge the muscle, since the foot is in it's final stage of atrophy.

Sounds like that might be the cause and it makes sense to me. I walk very

well but when I look at my foot, it is wasting away and just recently I

experienced those shocks. It really scared me because they kept coming every

five minutes for about a day and a half. Then they suddenly disappeared.

Wonder when they will come back??????????????

Karon

[Guest guest]

I have the same problem and take 4 mg of CLONAZEPAM per day.

The medication helps a lot but is highly addictive.

I let myself run out for 5 days before I could get more and it was the worst

thing I have ever been through. I even considered suicide.

I have no family to turn to. Maybe that would help.

Best: michael blanek

[Guest guest]

,

You have a family in us here. We understand what you go through.

Cathleen in Arkansas