nerve decompression surgery

[Guest guest]

,

See if this link works for you

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?CMD=search & DB=pubmed

the 3 paper titles for nerve decompression in CMT are:

1) Microvascular decompression for trigeminal neuralgia in

Charcot-Marie-Tooth disease.

2) Demonstration of neurovascular compression in trigeminal neuralgia

3) Nerve decompression at the wrist in patients with Charcot-Marie-Tooth

disease

And then there is this abstract found under HMSN:re: Dejerine Sottas/aka

Type 3 CMT: From J Neurosurg. 2002 Sep;97(2 Suppl):244-7.

Conus medulla-cauda compression from nerve root hypertrophy in a child

with Dejerine-Sottas syndrome: improvement with laminectomy and

duraplasty. Case report.

Kleopa KA, Sutton LN, Ong J, Tennekoon G, Telfeian AE.

Division of Neurology, The Children's Hospital of Philadelphia,

Pennsylvania 19104, USA.

This 7-year-old boy with Dejerine-Sottas syndrome caused by a mutation

in the myelin protein zero gene began to suffer rapid deterioration with

increasing leg weakness, loss of the ability to ambulate, and bowel and

bladder incontinence. Magnetic resonance imaging of the spine revealed

nerve root hypertrophy resulting in compression of the conus medullaris

and cauda equina. Decompressive surgery was successful in reversing some

of his deficits.

Perhaps Medline can give you more info.

My experience now: Nerve decompression surgery was on my plate when I

had so much back pain and spinal stenosis was evident. This was the 4th

of 5 opinions I sought after I had tried everything else. This was what

a neurosurgeon wanted to do plus open up my spinal canal. Fortunately, I

was directed to a spinal orthopedic surgeon who was extremely thorough

in his research, preparation and knowledge, and I did not need any

" nerve work " done - but he did a spinal fusion of L4 and L5 and

recognized that ALL my back problems - including nerves, were a result

of a herniated disc. Healing went according to plan, actually, better

than planned, to this day I have no back pain - not even nerve pain and

as you know I am very active - and yes, I can bend and move with the

best!

Here's a few suggestions: talk to a neurosurgeon or orthopedic surgeon.

Do some research yourself. You didn't state which nerves you mean, but

remember they're all connected. Try EVERYTHING first before surgery:

Tens, aqua therapy, traction, etc. Maybe even site injections - I had

those too.

Ask those doctors who are claiming that nerve decompression can help

diabetic persons. Get the doctors history - find out % of successful

cases and % of unsuccessful ones. Ask about follow-up and how the

patients are now if you can. Ask some of these doctors your specific

questions; also ask how long this procedure's effects will last. What

are they willing to guarantee? Our nerves are nothing to mess around

with - if you decide to have this done, thoroughly check out the

doctor's background - including malpractice cases. Neurosurgeons love to

operate - be careful. And like I said, try everything else first, while

getting to know your surgeon. A good surgeon/patient relationship made a

world of difference for me coming through back surgery in stellar shape.

Good luck.

~ Gretchen

[Guest guest]

I had a TLIF spinal fusion; I've posted this info already; don't want to be

redundant; but is that what you are looking for?  Are there archieves in this

group?

________________________________

From: Dick Terdiman <dick_terdiman@...>

spinal problems

Cc: Dick@...

Sent: Saturday, December 27, 2008 5:45:11 PM

Subject: Nerve decompression surgery

I am fighting severe sciatica. If a steroid shot on 1/5/09 doesn't work,

I'll be facing a nerve decompression surgery. I would like to hear from

people who have been through this surgery concerning the experience.

Specifically, I hope to learn what the aftermath of your surgery was: pain

levels, time in bed, time to resume moderate activity, time to resume full

activity. Any other thoughts or information would be very welcome. Thanks,

and I hope you're feeling OK now.

Dick

[Guest guest]

Hi Dick,

I would seek out a pain physician or neurosurgeon who

does a new procedure where they ablate the disk, they

burn the extruding portion that is compressing the

nerves . They do all of this without invasive surgery.

The invasive surgery is what sets you up with a

lifetime of probelms and should only be done when all

other avenues have been exhausted.

---

Spine Surgical Nurse

Six surgery spine patient

--- Dick Terdiman <dick_terdiman@...> wrote:

> I am fighting severe sciatica. If a steroid shot on

> 1/5/09 doesn't work,

> I'll be facing a nerve decompression surgery. I

> would like to hear from

> people who have been through this surgery concerning

> the experience.

> Specifically, I hope to learn what the aftermath of

> your surgery was: pain

> levels, time in bed, time to resume moderate

> activity, time to resume full

> activity. Any other thoughts or information would

> be very welcome. Thanks,

> and I hope you're feeling OK now.

>

> Dick

>

>

> [Non-text portions of this message have been

> removed]

>

>