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Welcome Kenny

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Welcome Kenny,

You wanted to know how others are dealing with CMT. Well, for me, it

is all about having a positive attitude, having hope, and keeping

well informed about what's going on in the research world.

I am 52, was diagnosed when I was 9/10, so I've had a lifetime

to " deal " with CMT. I prefer the word " manage " CMT now. My CMT IS

manageable to the extent I take care of myself, exercise, and keep my

attitude positive. My creation-centered spirituality also sustains

me.

I refuse to be a " victim " or " sufferer " of CMT, but rather through research and

other news, I participate in the solution which is one reason I

started this group. I do not have " good days " or " bad days " , I have

days full of life, light, color, work, and all that I am capable of being or

doing. My " problems " are only shadowed by the amount of " drama " I

allow in my life - and that is very small. Mostly none.

Exercise (aquatics especially) benefits my attitude, not to mention

my physical being, and when I can use the pool alone, I turn off the

overhead lights, turn on the inside pool lights, and it all becomes a

time of meditation for me which is very rewarding to my body and soul.

Welcome to the group!

Gretchen

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