Guest guest Posted September 18, 2004 Report Share Posted September 18, 2004 THis is sooo exciting! What is wrong with the USA! Oh yeah they make to much money on medicine. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2004 Report Share Posted September 18, 2004 Dear ers, Paolo Vinci M.D. in Rome has recently informed me that human trials of Vitamin C for CMT 1A will begin in Italy this coming January 2005. He also recommends that " while waiting for trial results, people with CMT 1A should take care of their feet and legs, according to the rehabilitation principles (proper shoes, orthoses, and so on); if there are foot and knee deformities, these will remain deformed even if the 'C' is effective " . For our new members, Dr. Vinci wrote the book " Rehabilitation Management of Charcot Marie Tooth disease, now only available through the Association of Italian Charcot Marie Tooth website http://aicmt.org/books.htm This book is a valuable resource and discusses stages of CMT. The website has some of his journal articles (in English), meeting reports, and video clips. Dr. Vinci was diagnosed with CMT Type 2 as a young boy of 6. ++++Gretchen Quote Link to comment Share on other sites More sharing options...
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