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Vitamin C - Italian trials to begin

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Dear ers,

Paolo Vinci M.D. in Rome has recently informed me that human trials of

Vitamin C for CMT 1A will begin in Italy this coming January 2005. He

also recommends that " while waiting for trial results, people with CMT

1A should take care of their feet and legs, according to the

rehabilitation principles (proper shoes, orthoses, and so on); if there

are foot and knee deformities, these will remain deformed even if the

'C' is effective " .

For our new members, Dr. Vinci wrote the book " Rehabilitation Management

of Charcot Marie Tooth disease, now only available through the

Association of Italian Charcot Marie Tooth website

http://aicmt.org/books.htm This book is a valuable resource and

discusses stages of CMT. The website has some of his journal articles

(in English), meeting reports, and video clips. Dr. Vinci was diagnosed

with CMT Type 2 as a young boy of 6.

++++Gretchen

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