Re: alcohol and medications

October 20, 2004

Laurie, you wrote " I heard alcohol can be toxic to this disease " .

Yes, it certainly can and I have 9 years of using it as proof. Part of my story

with this was in the Summer Issue of Quest

Even if doctors said alcohol and other substances would arrest CMT, there is no

way I'd return to using. My life is so wonderful now, with no problems or drama.

I have experienced reinnervation and I believe this is from living a healthy

lifestyle and avoiding alcohol, etc.

Please take care with the alcohol, especially with the mix of medications.

Gretchen

October 20, 2004

Gretchen,

Thank you so much for your story. I am at work right now but I printed it out

and will read it this evening when I get home. I really appreciate having this

message board, so many questions and sometimes doctors don't feel like they have

to time to call you back.

Laurie

October 20, 2004

In the past I have drank alot. In retrospect, I think it was because

I had that fatigued " beaten-down " feeling alot and drinking seemed to

put me in a better mood. However, since I have not been working I

have also not been drinking and I feel much better. I don't know how

to explain it, but alcohol somehow gave me a weak, sickly feeling (in

the days after drinking, more so than just a " hangover " ).

This is how my neurologist explained it to me: He said " I have

patients that see me because they have neuropathy resulting solely

from extended alcohol use. These people don't have a neurological

disease or disorder, but they have done neurological damage by

drinking too much over a long period of time. " This gave me an idea

of how bad it is for someone who already has a neurological problem.

Rob

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