Re: One for the books...............literally.

[Guest guest]

I have talked to one other person that had CMT on both sides of the family.

Just a guess here but was your Dad ever diagnosed with CMT?

With all his other medical problems he may have just developed drop foot from

something other then CMT. I say this because it was assumed my Dad had CMT

because he had 1 symptom. He remained strong as an ox. My sisters do not have

CMT and their kids are fine. I do not think he had CMT he just had high arches.

[Guest guest]

WOW, that is kind of scary. I keep thinking if my son does not get it it dies

with me, but i guess there is a liklihood that he could marry someone who

carries it.

Jackie

[Guest guest]

Bob,

Yep, it happens. Used to happen more with families who intermarried. But, I am

not surprised, with more and more people being diagnosed; I have often thought

the statistics on numbers of affected people are way off - and there are many

who go through life without a diagnosis, too; many families still don't

communicate about hereditary disorders - embarrassment, unimportance, whatever.

Let's hope genetic testing becomes more widely available and arrestment of CMT

is finally a reality.

Gretchen