Guest guest Posted October 7, 2004 Report Share Posted October 7, 2004 Si, Could possibly be CIDP - Chronic Inflammatory Demlyinating Neuropathy - that is treatable. http://www.ninds.nih.gov/health_and_medical/disorders/cidp.htm I have all normal tests too without the symptoms you mention, but I was diagnosed with CMT years ago. There are many variants/types of CMT now. Why did your doctor prescribe the nortriptyline as a " diagnostic tool " ? That is given for nerve pain, is that why? I take a similiar medication for that. 6 weeks is along time to take Nortriptyline - are you getting relief from it now? I had relief in 4 days, but those tricyclics can take up to 2 or 3 months for full benefit to be felt. CMT symptoms are often varied among us - and varied among families due to individual genetic codes. Senneff has written 3 books and if I remember, he includes CIDP treatment in them. (1. Numb Toes and Aching Soles 2.Numb Toes and other Woes and 3. Nutrients for Neuropathy) perhaps your library can get them for you. Sorry, but I can't remember if you said you had any of the DNA testing for CMT, HNPP or others. Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2004 Report Share Posted October 7, 2004 Gretchen, Thanks for responding. The nortriptyline was intended to diagnose whether my problems are neuropathic in origin (from research, I am now fairly sure they are), though has not helped yet. I haven't yet had any DNA testing, as I just yesterday discovered HNPP and CMT. From what I have read, HNPP/CMT/CIDP always present with at least some weakness/numbness. I have none. Could I still have one of these? Thanks again. -Si Quoting GfijiG6@...: > Si, > > Could possibly be CIDP - Chronic Inflammatory Demlyinating > > Neuropathy - that is treatable. > > http://www.ninds.nih.gov/health_and_medical/disorders/cidp.htm > > > > I have all normal tests too without the symptoms you mention, but I > > was diagnosed with CMT years ago. There are many variants/types of > > CMT now. > > > > Why did your doctor prescribe the nortriptyline as a " diagnostic > > tool " ? That is given for nerve pain, is that why? I take a similiar > > medication for that. 6 weeks is along time to take Nortriptyline - > > are you getting relief from it now? I had relief in 4 days, but those > > tricyclics can take up to 2 or 3 months for full benefit to be felt. CMT > symptoms are often varied among us - and varied among families due to > individual genetic codes. > > > > Senneff has written 3 books and if I remember, he includes CIDP > > treatment in them. (1. Numb Toes and Aching Soles 2.Numb Toes and > > other Woes and 3. Nutrients for Neuropathy) perhaps your library can > > get them for you. > > > > Sorry, but I can't remember if you said you had any of the DNA testing for > CMT, HNPP or others. > > > > Gretchen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2004 Report Share Posted October 7, 2004 Si - it seems so strange to me that a doctor would prescribe the Nortriptyline as a " diagnostic tool " as opposed to prescribing for symptoms management. CMT, HNPP and CIDP have many variations and not everyone is affected the same or has the same symptoms. I have CMT but no weakness or numbness, for example. Since I'm not a doctor, perhaps you should return to your doctor for diagnostic tests like the DNA test or the EMG/NCV to start. Giving you a medication is not a " diagnostic test " . Medications are for symptoms. Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2006 Report Share Posted June 30, 2006 > My soon to be 10 yr old son has a spot on his head that resembles thick > cradle cap in a baby. Anyone know what it might be, what the cause could be and > what to treat it with so it will go away? The barber noticed it the last time he > got his haircut. And the school nurse thought it might be ringworm, but it's > not. > Any suggestions or advise is greatly appreciated. > Thanks, > Rhonda Rhonda, No answer but I was just sitting here thinking of posting the same question. My 11 yr old son has the same thing but its getting fairly wide spread on his scalp. I'll be anxious to see what people say. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2006 Report Share Posted June 30, 2006 > For us, this thick scalp crud as well as sandpaper upper arm and back > skin was related to EFA imbalance. Our daughter was very low in omega > 6's. We use Eve Prim Oil applied topically on a continuing basis. If > we miss a few days, the above begins to reappear. Do you apply it on the scalp, arms, both, other? Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2006 Report Share Posted June 30, 2006 I have the same thing on my leg and I think it is yeast coming out in my skin. I started taking Threelac and it appeared, very itchy. I stopped taking the Threelac and it starts to go away, I then restarted 2 weeks later and it got red and itchy again. I also thought this was ringworm. I just found it very interesting that when I started the Threelac again it flared up again. I have heard that yeast can come out in the skin. I also have it on my hand and one big and several small spots on one leg. Just curious if you have started a new probiotic or increased. This is the only thing I can think of beside excema. >From: " mbrookh " <mbrookh@...> >Reply- > >Subject: Re: what could this be? >Date: Fri, 30 Jun 2006 13:09:59 -0000 > >For us, this thick scalp crud as well as sandpaper upper arm and back >skin was related to EFA imbalance. Our daughter was very low in omega >6's. We use Eve Prim Oil applied topically on a continuing basis. If >we miss a few days, the above begins to reappear. > > > > > > > > > > My soon to be 10 yr old son has a spot on his head that resembles > > thick > > > cradle cap in a baby. Anyone know what it might be, what the >cause > > could be and > > > what to treat it with so it will go away? The barber noticed it > > the last time he > > > got his haircut. And the school nurse thought it might be > > ringworm, but it's > > > not. > > > Any suggestions or advise is greatly appreciated. > > > Thanks, > > > Rhonda > > > > Rhonda, > > > > No answer but I was just sitting here thinking of posting the same > > question. My 11 yr old son has the same thing but its getting > > fairly wide spread on his scalp. I'll be anxious to see what >people > > say. > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2006 Report Share Posted June 30, 2006 I was also meaning to ask if your son is GFCF or does he take ezymes? My son's skin and scalp problems improved DRAMATICALLY after the first week! good luck! hanjkyla <kyleac@...> wrote: > My soon to be 10 yr old son has a spot on his head that resembles thick > cradle cap in a baby. Anyone know what it might be, what the cause could be and > what to treat it with so it will go away? The barber noticed it the last time he > got his haircut. And the school nurse thought it might be ringworm, but it's > not. > Any suggestions or advise is greatly appreciated. > Thanks, > Rhonda Rhonda, No answer but I was just sitting here thinking of posting the same question. My 11 yr old son has the same thing but its getting fairly wide spread on his scalp. I'll be anxious to see what people say. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2006 Report Share Posted June 30, 2006 It sounds like yeast/fungus overgrowth to me. Coconut oil or GSE rubbed into the scalp is what I'd try--this works for " dandruff " on my stepson. Colloidal silver would also be good to use. We haven't tried that, but I got the following info from a colloidal silver website, which suggested spraying a solution of colloidal silver on the scalp, as the silver kills the fungus: " Dandruff (or dry flaky scalp) is an itchy, annoying and persistent skin disorder of the scalp. Dandruff can cause either an overly dry scalp with itchy white flakes that may be waxy or greasy or dandruff can manifest as an oily greasy scalp with scales. . . . Today most skin specialists agree that dandruff is associated with a tiny fungus called Pityrosporum ovale, or, P. ovale for short. " I hope this helps. -- Lalita On Jun 30, 2006, at 4:23 AM, hanjkyla wrote: > > > My soon to be 10 yr old son has a spot on his head that resembles > thick > > cradle cap in a baby. Anyone know what it might be, what the cause > could be and > > what to treat it with so it will go away? The barber noticed it > the last time he > > got his haircut. And the school nurse thought it might be > ringworm, but it's > > not. > > Any suggestions or advise is greatly appreciated. > > Thanks, > > Rhonda > > Rhonda, > > No answer but I was just sitting here thinking of posting the same > question. My 11 yr old son has the same thing but its getting > fairly wide spread on his scalp. I'll be anxious to see what people > say. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2006 Report Share Posted June 30, 2006 it'd def. worth a try---I always give extra prime zyme witrh wheat/dairy.... Rhons44@... wrote: We haven't changed or added any supplements. I'm wondering if increasing his enzymes might help. Rhonda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2006 Report Share Posted June 30, 2006 HI, thanks for the info. I've received lots of ideas since posting my message. Now need to decide what to try first. Thanks again, Rhonda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2006 Report Share Posted June 30, 2006 Thanks again. His is an area about the size of your pinkie fingernail. But at times seems to be pretty thick. I scraped some off the other day and it felt greasy on the under side and pulled the hair out with it. I hope he won't have a small bald spot there now. He has exzema too, but that hasn't bothered him in about 8 months. Thanks, Rhonda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2006 Report Share Posted June 30, 2006 , I usually use a 1300mg capsule for backrubs. Otherwise, I just rub it on anywhere-legs, arms, back, tummy. I've never rubbed it on scalp. > > > > For us, this thick scalp crud as well as sandpaper upper arm and > back > > skin was related to EFA imbalance. Our daughter was very low in > omega > > 6's. We use Eve Prim Oil applied topically on a continuing basis. If > > we miss a few days, the above begins to reappear. > > Do you apply it on the scalp, arms, both, other? > > Thanks! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2006 Report Share Posted June 30, 2006 Rhonda, Both me and my daugther have this. Mine is do to a nut allergy. Didn't figure that out until i did the elimination diet with my daugther! I haven't figured out what causes her scalp problems (called sebhoriac dermatitis, btw). although after a year of interventions (homeopathy, enzymes, GFCF) it is slowly disappearing. Before, when i did researched the causes, it was believed to be a yeast problem. but for me its definately related to nuts and maybe even seeds. > > My soon to be 10 yr old son has a spot on his head that resembles thick > cradle cap in a baby. Anyone know what it might be, what the cause could be and > what to treat it with so it will go away? The barber noticed it the last time he > got his haircut. And the school nurse thought it might be ringworm, but it's > not. > Any suggestions or advise is greatly appreciated. > Thanks, > Rhonda > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2006 Report Share Posted June 30, 2006 The hard cradle-cap like skin sounds more like sebhorriac dermatitis then dandruff. I've had this for years. Yes, rubbing with oil (i use olive oil, but the ones mentioned below will problaby help) will loosen the scales and allow them to be combed off. But unless you find the root of the problem, then they will just reform. Tar shampoo is usually the medicinal way to control the problem, but i do not recommend this...especially for children. It can be controled by diet. For me it means not eating nuts and seeds. does this still mean it's a yeast/fungus problem? i don't know. i haven't figured out what causes the sb in my daughter. And because the problem is benign i don't do anything for it. I use it instead as a diagnostic tool. when it decreases, i know that her body is reaching a balance, when it increases, i know that her body is being stressed. just some of my thoughts... > > > > > > My soon to be 10 yr old son has a spot on his head that resembles > > thick > > > cradle cap in a baby. Anyone know what it might be, what the cause > > could be and > > > what to treat it with so it will go away? The barber noticed it > > the last time he > > > got his haircut. And the school nurse thought it might be > > ringworm, but it's > > > not. > > > Any suggestions or advise is greatly appreciated. > > > Thanks, > > > Rhonda > > > > Rhonda, > > > > No answer but I was just sitting here thinking of posting the same > > question. My 11 yr old son has the same thing but its getting > > fairly wide spread on his scalp. I'll be anxious to see what people > > say. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2006 Report Share Posted July 1, 2006 > > My soon to be 10 yr old son has a spot on his head that resembles thick > cradle cap in a baby. Anyone know what it might be, what the cause could be and > what to treat it with so it will go away? I had sebborheic dermatitis which I eliminated by taking biotin and selenium. Watch those tho, if the person is significantly deficient [which I was], they both cause major constipation unless taken with a LOT of magnesium. They apparently pull magnesium for proper absorption. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2006 Report Share Posted July 1, 2006 In the spirit of sharing information, I'd like to point out that the reason I used quotation marks around the word " dandruff " in my first post was because that is simply a common name for " a sebbhoreic scruff that forms on the scalp and comes off in small scales " (Webster's Unabridged Dictionary). If it's dry, folks call it dandruff. If your child was an infant, we'd be calling it " cradle cap. " These are all just names. A Latin name given by the medical profession is often only a description of the symptoms. In this case, " sebbhoreac dermatitis " is simply Latin for " inflammation of the skin with an excessive and abnormal discharge of the fatty secretion of the sebaceous glands " [which is a normal protective secretion of the skin]. But we already knew that! Naming it in a different language doesn't help with what we're really interested in: WHY this is happening--what's causing it, and how can we address the root cause. " Seborrhea is a chronic inflammatory skin disorder that affects the areas of the head and trunk that have sebaceous glands. A type of yeast that has an affinity for these glands called Pityrosporum ovale may be the cause, but this has not been proven yet. It is believed that the build-up of yeast in these glands irritates the skin causing redness and flaking. " (from an " About " Dermatology site) Ah, there's that yeast P. ovale again . . . And from an article in Journal of Family Practice: " Seborrhea is thought to be caused by an inflammatory hypersensitivity to epidermal, bacterial, or yeast antigens. Persons with seborrhea have a profusion of Pityrosporum yeast on the skin. This yeast can be a normal part of skin flora; seborrhea is an inflammatory reaction to its presence. Seborrhea is characterized by remissions and exacerbations. The most common precipitating factors are stress, immuno suppression, and cold weather. The treatment of seborrhea should be directed at the inflammation and the Pityrosporum. " In other words, we're probably dealing with yeast, so work toward getting the body in balance, reduce inflammation in the body in general (ginger tea can be helpful) and apply something topically to kill the yeast. Both coconut oil and GSE have worked for my stepson's " dandruff, " and my daughter-in-law used the coconut oil for my granddaughter's " cradle cap. " And don't let those Latin names distract you! Best wishes, Lalita On Jun 30, 2006, at 6:44 PM, newfisholdfish wrote: > The hard cradle-cap like skin sounds more like sebhorriac dermatitis > then dandruff. I've had this for years. Yes, rubbing with oil (i use > olive oil, but the ones mentioned below will problaby help) will > loosen the scales and allow them to be combed off. But unless you > find the root of the problem, then they will just reform. > > Tar shampoo is usually the medicinal way to control the problem, but > i do not recommend this...especially for children. > > It can be controled by diet. For me it means not eating nuts and > seeds. does this still mean it's a yeast/fungus problem? i don't > know. > > i haven't figured out what causes the sb in my daughter. And because > the problem is benign i don't do anything for it. I use it instead > as a diagnostic tool. when it decreases, i know that her body is > reaching a balance, when it increases, i know that her body is being > stressed. > > just some of my thoughts... > > > > > > > > > > > My soon to be 10 yr old son has a spot on his head that > resembles > > > thick > > > > cradle cap in a baby. Anyone know what it might be, what the > cause > > > could be and > > > > what to treat it with so it will go away? The barber noticed it > > > the last time he > > > > got his haircut. And the school nurse thought it might be > > > ringworm, but it's > > > > not. > > > > Any suggestions or advise is greatly appreciated. > > > > Thanks, > > > > Rhonda > > > > > > Rhonda, > > > > > > No answer but I was just sitting here thinking of posting the > same > > > question. My 11 yr old son has the same thing but its getting > > > fairly wide spread on his scalp. I'll be anxious to see what > people > > > say. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2006 Report Share Posted July 2, 2006 It sounds like seborrheic keratosis. I've had that and so has my DIL (on her head). It usually occurs in older people, but I guess it could occur in children. I would suggest taking your son to a dermatologist. Most regular doctors couldn't tell you for sure. These lesions, if that is what it is, are usually benign. Peace, Kathy E. > > My soon to be 10 yr old son has a spot on his head that resembles thick > cradle cap in a baby. Anyone know what it might be, what the cause could be and > what to treat it with so it will go away? The barber noticed it the last time he > got his haircut. And the school nurse thought it might be ringworm, but it's > not. > Any suggestions or advise is greatly appreciated. > Thanks, > Rhonda > > > Quote Link to comment Share on other sites More sharing options...
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