Guest guest Posted December 28, 2000 Report Share Posted December 28, 2000 My kid went nuts on Versed; basically she reacted in an opposite way of everything this physician has written. Became hyper, then became very agressive, and then went totally out of control. One of the hardest moments of my life. > Anesthesia/surgery/dentists and our AS children have come up on a few of my > lists. Thought these links might be of some help to some of you. > > > <><><><><><><><><><><><><> > > http://www.autism.com/ari/kirz.html > Surgical anesthesia and autistic children > > http://www.autism.com/ari/dental.html > Dental Anesthesia for the Autistic Child > (also has link ~ www.aamgpaloalto.com ~ on dental/pediatric anesthesia. > > > > > " What's done to children, they will do to society " . Orlando A. Battista > > " Nobody realizes that some people expend tremendous energy merely to be > normal. " -- Albert Camus > > " Every new adjustment is a crisis in self-esteem. " -- Hoffer > > " Nothing is impossible; some things just require more steps. " Author > Unknown Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2004 Report Share Posted October 25, 2004 Anesthesia and the CMT Patient by ph F. Antognini, M.D. University of California Medical Center Anesthesia is safer now than it has ever been. This is particularly true for individuals who have medical problems, including patients with Charcot-Marie-Tooth disease. Two important reasons for this improved safety are better monitoring devices and shorter-acting anesthetics. How do these improvements specifically impact patients with CMT? First, the last decade has seen the introduction of pulse-oximetry and capnography into routine anesthesia practice. Pulse-oximetry can measure the amount of oxygen in your bloodstream...a small " Band-aid " is placed around a finger, earlobe or toe, and a special light is passed through the finger and a receiver on the other side captures the light and is able to tell your anesthesiologist how much oxygen is in your bloodstream. This technology allows your doctor to watch how well your lungs are working to deliver oxygen to the rest of your body. Capnography measures the amount of carbon dioxide that your lungs are producing, and this is an important way of detecting changes in your breathing while you are asleep for your surgery. Because breathing problems are an important cause of anesthetic complications, this monitor has improved our ability to detect problems early, thus decreasing serious complications. These monitors are important for CMT patients, since they may have lung problems which they don't know about. New anesthetic drugs have the advantage of being shorter acting, so that patients wake up faster. This may be important for the CMT patient, since anesthetics depress breathing, and in the light of the potential lung problems in CMT patients, these newer drugs have an obvious advantage. These new drugs include propofol and desflurane. Since many patients with CMT have orthopedic surgery, usually on their legs or feet, the best choice for anesthesia would be a regional anesthetic such as a spinal or epidural. Both of these " numb " your body from the waist down and last for 1-3 hours or longer, depending on what type of anesthetic drug is used. These anesthetics avoid general anesthesia, which depresses the whole body. If your surgery is very minor, you may on need a local injection of anesthetic around where your doctor is going to do the surgery...this is the best choice, if possible, since you can recover quickly and go home. Your anesthesiologist may speak to you the night before surgery, or, quite often, just prior to your surgery. This sometimes prevents you from having a lengthy and informative talk about your anesthetic. It is important that you have every question answered, so as to allay any fears. Several days before your operation, ask your surgeon who your anesthesiologist is going to be, and call him or her. Tell him/her about your CMT and any problems that you may have had with anesthetics in the past. In this way, you can make sure that they are aware of your condition, and they can develop an anesthetic plan that is safest and best for you. Remember, the type of anesthetic you receive is a decision made by you and your anesthesiologist. There may be reasons why your anesthesiologist might recommend an anesthetic different from what you might be thinking about...every case has to be individualized. But rest assured that no matter what choice is ultimately made, anesthesia is safer than it has ever been! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2005 Report Share Posted July 22, 2005 I'm a non-practicing internist & mother of a 12 yo boy with autism. My son had general anesthesia for dental rehab at age 4 1/2 at a local hospital. They gave him valium as a pre-med which was much too long-acting. There are many other medications available with a shorter half life. At age 7 my son required sutures on his lip for a fall from a swing. He was sutured in the ER using " twilight sleep " (IV meds versed & fentanyl). That worked extremely well. I do recall that the doctor wanted to use ketamine at 1st, but I didn't think it was a good idea since one of the side effects can be seizures, and children with autism are already more likely to have seizures than the typical population. Insist on being there before & after the procedure. Also, suggest they use a topical anesthetic on the skin 20 min before placing the IV. If you have time to go to your local pharmacy, you can get OTC eli-max without a prescription. After Jon's dental rehab, we prioritized teaching him how to tolerate tooth brushing & getting his teeth cleaned. If you want to look at our old program for ideas, please write me privately. Marilee brew@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2006 Report Share Posted June 2, 2006 Last week, I underwent both. Monday I had Twilight for colon test (aleep for less than an hour), felt alittle tired that afternoon, but no problems Thur. May 25 went under for over an hour for explant surgury. Felt more tired the first 3 days afterward.sedwards41255 <sedwards41255@...> wrote: Just wondering if everyone that had explantation and a lift went under general anesthesia (unconscious).....or if some had Twilight anesthesia (local with sedation - basically sleeping). I am really afraid of anesthesia...never have been under general anesthesia before....I would think there would be fewer affects with Twilight...than with general.....and have asked Dr. Kolb is I could have Twilight. She said....."anesthesia prefers general"...but I might still ask for the Twilights if at all possible. That is how afraid I am of anesthesia.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2006 Report Share Posted June 2, 2006 , I prefer general. I am a whimp and I fear waking up during a surgery more then I fear any other risks. I have had quite a few surgeries and only had one time where I woke up with nausia. Other then that, it was like waking up from a deep sleep. sedwards41255 <sedwards41255@...> wrote: Just wondering if everyone that had explantation and a lift went under general anesthesia (unconscious).....or if some had Twilight anesthesia (local with sedation - basically sleeping). I am really afraid of anesthesia...never have been under general anesthesia before....I would think there would be fewer affects with Twilight...than with general.....and have asked Dr. Kolb is I could have Twilight. She said....."anesthesia prefers general"...but I might still ask for the Twilights if at all possible. That is how afraid I am of anesthesia.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2006 Report Share Posted June 2, 2006 Molly, That makes me feel much better. Thank you! I will be going to Dr. Kolb and have surgery on June 14th (counting the days!!!). Thanks for you information on Dr. Knos. I had blood work done about a month ago...and my liver and kidney function tests were O.K....so I hope surgery is not cancelled for any reason. I have been on diflucan for about a week and a half now...hope that doesn't do anything to the liver readings... > > > > Just wondering if everyone that had explantation and a lift went under > > general anesthesia (unconscious).....or if some had Twilight > > anesthesia (local with sedation - basically sleeping). > > > > I am really afraid of anesthesia...never have been under general > > anesthesia before.... > > > > I would think there would be fewer affects with Twilight...than with > > general.....and have asked Dr. Kolb is I could have Twilight. She > > said..... " anesthesia prefers general " ...but I might still ask for the > > Twilights if at all possible. That is how afraid I am of > > anesthesia.... > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2006 Report Share Posted June 2, 2006 , I had twilight sedation for my explant and lift surgery which took 4 hours in a hospital room. I do remember waking up while the surgeon was still working on my right breast, sewing me up. He was talking to the nurse about a movie or something, and so I let them know I could hear them and understand their conversation. They gave me a little bit more and the next thing I remember was waking up in recovery. The twilight wasn't bad at all. Pattysedwards41255 <sedwards41255@...> wrote: Just wondering if everyone that had explantation and a lift went under general anesthesia (unconscious).....or if some had Twilight anesthesia (local with sedation - basically sleeping). I am really afraid of anesthesia...never have been under general anesthesia before....I would think there would be fewer affects with Twilight...than with general.....and have asked Dr. Kolb is I could have Twilight. She said....."anesthesia prefers general"...but I might still ask for the Twilights if at all possible. That is how afraid I am of anesthesia.... __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2006 Report Share Posted June 2, 2006 , it sounds like you are right on track. I doubt if your surgery will be cancelled. My liver enzymes were high before I went, which is why Dr. Knos ordered another test the evening before surgery. She was concerned that the pattern was going 'up'. She stopped the surgery, just before I went into the operating room. She was diligent, and cautious. This is good. Most people only think about the surgeon, and rarely the anesthesiologist. Hospitals often won't even tell you what anesthesiologist you are going to have, because they assign it based on who is there at the time. I refuse to do that. The anesthesiologist is as important as the surgeon - I learned that the hard way. You will be in good hands with Dr. Kolb and Dr. Knos. > > > > > > Just wondering if everyone that had explantation and a lift went > under > > > general anesthesia (unconscious).....or if some had Twilight > > > anesthesia (local with sedation - basically sleeping). > > > > > > I am really afraid of anesthesia...never have been under general > > > anesthesia before.... > > > > > > I would think there would be fewer affects with Twilight...than > with > > > general.....and have asked Dr. Kolb is I could have Twilight. > She > > > said..... " anesthesia prefers general " ...but I might still ask > for the > > > Twilights if at all possible. That is how afraid I am of > > > anesthesia.... > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2006 Report Share Posted June 2, 2006 Thanks Patty, I did email Dr. Kolb...and her response was that " anesthesia prefers to do the general " ...however...it is something I will discuss with her further when I get there. Like " I know they prefer it ...but can they do the twilight successfully ...etc. " I would rather feel better faster.....since we have a 10 hour plus drive back home. Ya know? > Just wondering if everyone that had explantation and a lift went under > general anesthesia (unconscious).....or if some had Twilight > anesthesia (local with sedation - basically sleeping). > > I am really afraid of anesthesia...never have been under general > anesthesia before.... > > I would think there would be fewer affects with Twilight...than with > general.....and have asked Dr. Kolb is I could have Twilight. She > said..... " anesthesia prefers general " ...but I might still ask for the > Twilights if at all possible. That is how afraid I am of > anesthesia.... > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
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