Guest guest Posted November 15, 2004 Report Share Posted November 15, 2004 Faye, All I can offer is my own experience when I was 14. Diagnosed 4 years earlier, I had a muscle/nerve biopsy that summer that showed nothing out of the ordinary. Life in general was fairly smooth, by that time I was on established doses of Potassium for muscles and Ritalin for fatigue. My feet hurt after walking around school all day, sometimes my muscles got spastic and cramped. The best solution for this was sleep. I was doing alot of horsebackriding at 14 too. I've never been " tested " (DNA) for CMT. Am the last one alive in my biological family, so it is pointless for me. No one in the family has anything even close to resembling CMT. I have never had problems with red hands, or anything with hands, except when exceptionally tired, may drop something. Any pain I have encountered then and since is foot related, not in my entire body. CMT has progressed so slowly I haven't noticed much since - but I sure was worried about " progression " at 14 and what 'would' happen. We are all different. I wish I could be of more help. Has your daughter been tested for CIDP or other immune related disorders or neuropathies? Gretchen Quote Link to comment Share on other sites More sharing options...
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