My Introduction

[Guest guest]

Hello, my name is Mandy. I am twenty eight years old and I have lived with CMT

all of my life, as far as I can remember, anyway. And I just found out that I

have passed it on to my now two year old daughter, Tea' . As far as living with

CMT, I don't really think about it that much. It doesn't effect my daily living

in many ways, other than I am clumsier than most, fall down frequently and have

small abnormally shaped feet. I guess I am one of the lucky ones. My mother

has it and my grandfather has it. My great-grandmother, who is passed on, had

it and I am not sure who from there, but its been in my family for many

generations, I've been told. Neither my mother or grandfather are disabled

dibilitatingly by CMT, although my grandfather, who was a fire fighter retired

early due to the diseases progression.

But now that I have found out that my daughter must live with it, its been

weighing on my mind. ALOT. She has only had a genetic test so far. Now we are

waiting to be seen by a neurologist and orthopedic surgeon. All things I have

been through before. Been there done that, to coin a phrase I've seen several

times in earlier posts. So I guess we will know more in a few weeks. But with

such wonderful resources as this group, I was wondering if any one has any

suggestions for us as to treatment options and such. I don't receive any

treatment for my own symptoms as I really don't have too many other than the

clumsiness. But its different when it's your child. Anywho, just wanted to

introduce ourselves and say hello.

Mandy