welcome Diane/testing for children

[Guest guest]

Good Day Diane and Welcome!

I am 55 and was diagnosed with CMT1A via DNA testing in November of 2000.

Mind you, CMT1A is the most common form of CMT.

At the time the DNA Department at the Credit Valley Hospital wanted us to

have our 10 year son tested. After careful consideration and input from some

very reliable sources, we declined.

We suspect he has CMT - he has high arches, walks on his toes at times and

trembles a bit. That is all for now. He does not require any treatment at

this time.

Hence, the major reason was this. If our 10 year old son was diagnosed with

CMT, that would be in his medical file and follow him throughout his life.

This would make it extremely difficult to get any kind of Life Insurance,

and almost impossible for him to get any Short term or Long Term disability

insurance.

is now 15 and still does not require any treatment. We have educated

him very well about what to look for later on in life should the need arise.

As you say, knowledge will be key to prevent future frustration.

I understand there is a difference between type 1 and type 2, which may

warrant having your children tested, especially if they are in need of some

form of treatment.

Kindest regards,