Guest guest Posted June 13, 2002 Report Share Posted June 13, 2002 Dear , My daughter was on Acutane for many years, and the most important thing is that it has the potential of causing great liver damange, and they need to monitor you a lot. She got tested every few months when on the drug, and she was a healthy teenager at the time. Cathie >From: " jhan1313 " <jhan1313@...> >Reply- > >Subject: [ ] Accutane >Date: Thu, 13 Jun 2002 18:16:27 -0000 > >Hi there! just wondering if anyone has been on Accutane as a >treatment for acne caused by prednisone or other meds. i've heard >many risks and side effects about this drug , but more importantly, >such positive responses to it. I have tried several other meds and >antibiotics for this steroid-induced acne, but nothing has helped >tremendously. my only concern is if Accutane might possibly cause >any greater liver damage- i know that's always a possiblity. >if anyone has any input on this, i would greatly appreciate it!! > >thanks, >julie > _________________________________________________________________ Send and receive Hotmail on your mobile device: http://mobile.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2002 Report Share Posted June 14, 2002 Hi, I was on accutane about 2 years b4 I was diagnosed w/ AIH (though I probably had it and didn't know while on accutane)...the fact that I was on accutane, actually delayed my AIH dianosis, becuz when I was routinely monitored while on accutane, my doctor noticed I had " abnormal " liver tests, but he thought it was due to just the accutane...and when I got off of accutane (due to the high costs), I still had these abnormal liver tests, but he still thought it was because of the accutane... Other than that, it did clear up my acne, but I was just scared to take something that was so lethal it could heinously disfigure fetuses...I know you're suppose to wait a few months to get the accutane out of your system b4 getting pregnant, but that still scared me, plus, like I said, it also was expensive with the insurance i had at the time... -Lia (AIH 10/00) > Message: 11 > Date: Thu, 13 Jun 2002 18:16:27 -0000 > From: " jhan1313 " <jhan1313@...> > Subject: Accutane > > Hi there! just wondering if anyone has been on > Accutane as a > treatment for acne caused by prednisone or other > meds. i've heard > many risks and side effects about this drug , but > more importantly, > such positive responses to it. I have tried several > other meds and > antibiotics for this steroid-induced acne, but > nothing has helped > tremendously. my only concern is if Accutane might > possibly cause > any greater liver damage- i know that's always a > possiblity. > if anyone has any input on this, i would greatly > appreciate it!! > > thanks, > julie > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 12 > Date: Thu, 13 Jun 2002 15:29:07 -0500 > From: " c reece " <maplecolors@...> > Subject: Re: Accutane > > > Dear , My daughter was on Acutane for many > years, and the most > important thing is that it has the potential of > causing great liver damange, > and they need to monitor you a lot. She got tested > every few months when on > the drug, and she was a healthy teenager at the > time. Cathie > > >From: " jhan1313 " <jhan1313@...> > >Reply- > > > >Subject: [ ] Accutane > >Date: Thu, 13 Jun 2002 18:16:27 -0000 > > > >Hi there! just wondering if anyone has been on > Accutane as a > >treatment for acne caused by prednisone or other > meds. i've heard > >many risks and side effects about this drug , but > more importantly, > >such positive responses to it. I have tried > several other meds and > >antibiotics for this steroid-induced acne, but > nothing has helped > >tremendously. my only concern is if Accutane might > possibly cause > >any greater liver damage- i know that's always a > possiblity. > >if anyone has any input on this, i would greatly > appreciate it!! > > > >thanks, > >julie > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2004 Report Share Posted September 21, 2004 I was afraid to try accutane because of the muscle weakness side effect. What has helped my acne the most is Flora. It has acidophilus in it. I have been using smooth beam lazer, IPL lazer, antibotics, dermobrasions, steroid shots, gels and creams for 3 years now. This Flora is amazing. It rebuilds the immune system allowing your body to heal its self. I couldn't believe it till I tried it. Worked fast for me with in 3 days I was healing. Worth a try. Acidophilus: FloraSource is the Most Potent Acidophilus Formula Available. This is the brand I use. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2004 Report Share Posted September 21, 2004 Hi Gretchen, My 21 year old son who has CMT, has been prescribed " Accutane " for severe acne. Have you heard of any contraindications to taking this drug for CMT patients? Appreciate any feedback available. Warmest Wishes, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2004 Report Share Posted September 21, 2004 Hello , I haven't read or heard anything about CMT and Accutane, but here's a few links. There IS mention of muscle problems as a side effect. Also respiratory problems. http://www.fda.gov/cder/drug/infopage/accutane/medicationguide.htm http://www.naturalessentials.com/accutane.htm Not to alarm you, but there have been many lawsuits resulting from Accutane. http://www.accutane-side-effects-lawsuits.com/ +++ Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2004 Report Share Posted September 21, 2004 I would like to share my daughter's experience with Accutane, even though she does not have CMT. Kari's dad and I agreed to let her go on Accutane last year after exhausting about every other possible treatment, due to the severe side effects this drug can have. She was 16 at the time. The results were miraculous during her 6 month treatment, and she is acne free today, after being off the drug for 11 months now. However, her cholesterol was very high during her treatment. Doctors are extremely careful and are required by Federal Law to run blood work every month to monitor these kinds of readings. If your son has had any type of depression in the past or already experiences dry eyes, throat or anything of the like, make sure you discuss this thoroughly with his dermatologist. My daughter wears contact lenses and is also a vocalist, but only experienced mild dryness. Like I mentioned, the results were miraculous, and I think severe side effects are quite rare, but I urge you to investigate your options. Good luck to your son. Acne can be a very emotionally painful experience for both the child and the parents. K. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2006 Report Share Posted September 21, 2006 Tammy, Read through this site and links here. Good information. http://www.fda.gov/cder/drug/infopage/accutane/ ~ Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2006 Report Share Posted September 25, 2006 Gretchen, I noticed there has been alot of messages regarding accutane as a treatment for acne. Attached is a scan of part of an article called " Best Supplements " that was published in Men's Health magazine. It recommends taking zinc as a treatment for acne. Mike - Mike, attachments are discarded before reaching , so perhaps you can send the URL to the article. ~ Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2007 Report Share Posted June 22, 2007 Dave, I completely understand!! Accutane was a god-sent to me! It cleared up everything and it's been 5 years and nothing has come back. However, here was the down side and I can't be sure it's related...I can trace my candida back pretty early, about 7 years ago. So, after 1 year or two I started to loose my hair in diffuse ways, not in chunks. I've been to every doctor and it's not genetic or any of those other reasons (I " m a 29 yr old female with NO family history of hair loss). They all said it was " stress-related " . I'm just starting to go the diet. If you go on the diet now, you can probably prevent any loss, if that is related. I can't be sure, but my hair loss started once my acne had cleared...it was like I had traded one symptom for another. Hope this helps, really, do the accutane, it was so helpful, but also get rid of this candida! kellie >From: " Patient " <Lowfront@...> >Reply-candidiasis >candidiasis >Subject: accutane >Date: Fri, 22 Jun 2007 18:50:04 -0400 > >Well after 6 years of horrible acne I have decided to go on accutane. > >I know this stuff is poison to my buddy and there is a chance that I have >problems the rest of my life because of it, but I'm doing it. > >I have developed so many psychological and social problems from my acne I >just can't take it anymore. > >I know my problem is candida and I'm going to keep on the candida diet but >accutane is going to be my starting point to clear skin. > >My skin is in such bad shape even if I do become clear with the diet and >killing candida I would still have a whole face full of blackheads etc. > >I'm going to keep on the diet support my liver as much as possible while on >the drug, supplement needed nutrition and see what happens. > >I have thought this through for many years and its time, I can't keep >living >like a hermit in my room afraid of the world. > >So any thoughts of my condition with accutane, I really don't want any > " DONT >TAKE IT " comments. I'm far passed that. I have been thinking about this >for a very long time. > >Just give me some words of advice on liver support, and supplements I >should >take while on this horrible horrible drug. > >Thanks >Dave > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2007 Report Share Posted June 22, 2007 I'm sorry, I know you requested no 'don't take it' replies, but I truly believe you are making a huge mistake taking that medication... you essentially will be inducing vitamin A toxicity unto you system. To this day I still feel that taking this medication has resulted in a HUGE degradation in my health. I have a chronic dry eye condition now and I also believe it played a huge role in my development of irritable bowel. There are of course other factors at play, but even the drug leaflet states that side affects are inflammatory bowel disease. DO NOT TAKE IT... IT TRULY IS POISON! I regret ever getting mixed up with that junk. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2007 Report Share Posted June 23, 2007 > Supplements (flaxoil, msm, undernatured whey, zinc, vitamin c, coconut > oil, digestive enzymes, inulin, liquid chlorophyll, nutritional yeast > flakes, etc, etc. > > > So does anyone know, Duncan looking in your direction, what I should and > should not take while on this horrible drug? > //> I noticed you didn't mention natural vitamin A. Have you tried taking 30K IUs or more of natural vitamin A with adequate vitamin D3 (about 4K+ IUs/day)? Accutane is a high dose synthetic vitamin A derivative. You'd be MUCH better off with a natural high-dose course of vitamin A from liver or fish liver oil first. I'd give it a shot before resorting to Accutane. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2007 Report Share Posted June 24, 2007 I would also advise against accutane, there is another blog I belong to in which people describe their post accutane symptoms....mine is chronic hairloss at 22 yrs old. I thought it was the candida, but I believe it may be the accutane, it occured 9 months after my last dose. I understand the feeling that acne is taking over your life, but accutane is really a terrible answer. How long have you been on the diet, I would think that it would help your acne tremendously. I also had a question for Bee: I noticed that after I made Quinoa and Brown rice flour pancakes I became really tired and had mroe discharge, does this mean I could have an allergy? Thank you!!!!!!!!!!!!!!!!! -Kellie >From: " Alison Lorraine " <alisonlorraine@...> >Reply-candidiasis >candidiasis >Subject: Re: accutane >Date: Sun, 24 Jun 2007 13:46:51 -0000 > >Hi , > >I've finally gotten rid of my acne once and for all by using an >anti-parasitic facial creme called Xin Fumanling, available from >demodexsolutions.com - I was about ready to cave in to Big Pharma >after many products and diets had failed - and had even visited a >dermatologist for Retin-A when I discovered their site... having used >them now for months, I can sincerely state that their Zhongzhao and >Fumanling products are fantastic. > >My skin had NEVER been blemish-free since I was 16 (for about 15 years >iow), but now it is and has never looked better, it's like I never >even had acne. Being involved in a career that requires frequent >photo shoots, thankfully I don't have to wear a ton of makeup to hide >acne anymore. > >I find a topical to be much preferred over an ingestant, especially an >antibiotic, due to my long history of digestive problems and >relationship with Candida. > >Best of luck to you, > >Alison :-) > > > > > > I have tried everything which is why I said that I'm taking accutane. > > This is a major last resort. I'm asking for advice while on it. Not > > " don't take " it " try this or that " . I have done it all. > > > > > > Dairy, wheat, gluten, sugar, yeast free diet > > > > All creams and lotions under the sun with a long periods of not using > > harsh chemicals on the face > > > > Total organic diet > > > > Liver flushes > > > > Enemas/colonix > > > > lots of exercise (rebounding, soccer) > > > > Skin brushing > > > > meditation > > > > Used Juicer daily with array of vegetables > > > > Tons of probiotics > > > > Supplements (flaxoil, msm, undernatured whey, zinc, vitamin c, coconut > > oil, digestive enzymes, inulin, liquid chlorophyll, nutritional yeast > > flakes, etc, etc. > > > > > > So does anyone know, Duncan looking in your direction, what I should >and > > should not take while on this horrible drug? > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2007 Report Share Posted June 27, 2007 Dave: I don't think it would be a good idea to have your silver fillings removing while taking Accutane at the same time. I think that would be too much on your system. Bonnie accutane believe me guys I know all the risks. I have thought about taking this drug for years before actually taking it. Everything just got too hard for me after trying everything and still dealing with it. I know everyone has there horror stories, and I'm planning on having mine. I'm at the point of accepting all the side effects possible. The only thing that is keeping me with any hope at all is the fact that my dad took it when he was young and didn't have any problems with it at all. That does mean I have a better chance of no problems right? My life is turning worse and worse from my depression and social problems. I spend any free time I have in my room with my door shut and thats it. I don't see my friends anymore. Haven't really seen them in over a year. Its because of my skin. So am I going to stay on this track and keep being a wreck or sacrifice a possible sever side effect to get back on track with myself. I would choose the possible sever side effect. I'm just trying to get you guys to understand why I choose to do this. I'm not one of those teenagers that constantly complain about their light acne. I'm a 21 year old that have dealt with it for over 5 years. I have sever scaring acne. I have even dropped over 10 college courses over my acne. Couldn't handle leaving my house. So to talk about your bad side effects to me doesn't effect me at all. I'm ready for them, so I can at least go food shopping without having an anxiety attack. I'm going to continue the Candida diet and use the accutane as a starting point with clear skin. When I'm done in 5 months I'm going to hopefully have great skin, and I'll be 5 months longer into the very strict Candida diet. If all goes well I'm hoping to be all set by the time I'm off and after I do heavy heavy detoxing right afterwards. Also am planning on getting my fillings removed in a few months, have an appointment with a homeopathic dentists next month. Sorry for the ramble and thanks for reading and responding Dave Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2007 Report Share Posted June 29, 2007 Hi I dont know anything about this drug or acne personally in myself, though I suffered badly from skin problems in my teens it was not acne. But I can say this. I saw what acne did to my brother and heard what my father went through with it also. I wouldn't wish it on anybody. The psychological and social suffering both of them went through because of this affliction was horrible. in fact, I think either at one time or another contemplated suicide. For those who do not or have not suffered this, it is easy to think " no big deal " , but for the sufferer it is devastating and humiliating. It shouldn't be, but unfortunately people are people and we live in a VERY shallow, surface society. plus the fact of the matter, most of us are pretty self conscious and not overly self confident anyway. Yeah there are wonderful people out there who look past that, but again it is still a matter of self confidence/self worth. My brother ended up going on a drug for his acne because I believe it was destroying him. He never said much about it, just stayed mainly in his room and didn't really go out a lot. When he did, he always looked self conscious and uncomfortable. And I coudln't really call him a vain person, but this really did affect him. Finally he got a drug (dont know what it was) and it worked by closing up the secretion/sebum? glands of his skin (may have that wrong). At any rate, it worked by doing closing completely to the point his skin became very dry and he had to be careful when he was out in the sun. And it was working, though is skin was at times uncomfortable with the dryness. I think he had to put stuff on it sometimes to lubricate. Then once he had been on the drug long enough, he was taken off it. So the glands re-opened, but never to the extent they were. He cured his acne and became more social and less self conscious. Married and had three kids. My Dad had it and suffered horribly. no sympathy or support at all from his family who sneered at him and told him to get on with it and get off his pity pot basically. He withdrew even further and had to pretty much live with his acne, which left pits and scars, which also covered his neck. Yes finally he 'grew out of it " , but he missed out a lot. if he did go out? The comments he got were enough to cause him to withdraw again. He had no drug to help him at all. In those days they didn't. Dave, I'd say that though Id feel awful to endorse anything that could harm your health, with that said, I would also feel bad to tell you NOT to take it with what youre going through. Psychological suffering is at times worse than physical. I have great sympathy for anybody who suffers from this affliction. I hope that through diet, healthy fats, supportive supplements and even milk thistle for your liver, any adverse side effects maybe less intense if your body is primed to cope better with these efforts. Whatever you decide to do, I wish you all the best and let us hope you will get rid of this and come out the other side. My first cousin also went on a drug for her acne and came out of it. I do not know what they used, can find out if you're interested. Adam. > > > >Well after 6 years of horrible acne I have decided to go on accutane. > > > >I know this stuff is poison to my buddy and there is a chance that I have > >problems the rest of my life because of it, but I'm doing it. > > > >I have developed so many psychological and social problems from my acne I > >just can't take it anymore. > > > >I know my problem is candida and I'm going to keep on the candida diet but > >accutane is going to be my starting point to clear skin. > > > >My skin is in such bad shape even if I do become clear with the diet and > >killing candida I would still have a whole face full of blackheads etc. > > > >I'm going to keep on the diet support my liver as much as possible while on > >the drug, supplement needed nutrition and see what happens. > > > >I have thought this through for many years and its time, I can't keep > >living > >like a hermit in my room afraid of the world. > > > >So any thoughts of my condition with accutane, I really don't want any > > " DONT > >TAKE IT " comments. I'm far passed that. I have been thinking about this > >for a very long time. > > > >Just give me some words of advice on liver support, and supplements I > >should > >take while on this horrible horrible drug. > > > >Thanks > >Dave > > > > > > Quote Link to comment Share on other sites More sharing options...
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