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CMT pain/pain clinics

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I would like some feedback if anyone is going through the same

symptom, and if so what type of treatment your dr. has

try/suggested. Anything would be helpful.

I currently have had my Neurontin up from 1800mg/day to 2700mg/day

and have been put on Valium. I have severe leg and arm pain. My dr

tried me on 1800mg of the Neurotin along with Nortriptytiline but I

felt like I was having a heart attack it was awful! So they stopped

Nortryptiline and upped Neurontin put me on Vicadin and Flexeral still

no relief. Stopped that now I am on the Valium and 2700mg of the

Neurotin..I am still in pain..I am also on Ambien but I still can't

sleep and it used to help. The dr has suggested a pain clinic but

that appointment isn't til nov. 30th.

I am to the point with the pain I can bearly function and I am only

32..What's it gonna be like when I am 50,60 years old..I can't

imagine what the pain will be at that age! I am not the only one

that is suffering but also my family because I can't do the things I

use to.

Has anyone been to a pain clinic? what did they do for you? Did it

help? Any feedback would be greatly appreciated!

Thanks,

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