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I am a 59 year old retired college math and computer instructor who

has lived most of his life with Type 2 CMT. My brother and I are

the only members of our family who have been diagnosed but it is

obvious that our father and his brothers, along with our paternal

grandfather had CMT.

About nine years ago I was diagnosed with lymphoma and had a

successful treatment that included vincristine and adriamycin. As a

result of the chemo, I am now experiencing a painful burning

sensation in my feet that is controlled with neurontin.

My brother and I have experienced the problems of CMT since early

childhood but were first " diagnosed " around 25 years ago and have

worn AFOs until around 5 years ago. We both put the AFOs away and

use a cane for balance as the AFOs seem to cause us to have pain

and tired feet.

KD5UJH

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