Introduction

[Guest guest]

Hi, My name is Zenaida Astone, a deaf happily married mother of three beautiful

boys from 14 years old to 5 years old. I wanted to know more about CMT and how

to manage it for the rest of my life. My doctor Ware performed the muscle biopsy

from my right calf to see if I had this disease(CMT)due to my right foot

deformity which its muscle that deteriorate slowly each year since 1999.

Surprisely, the result came out negative! Unfortunately, my left foot started to

deteriorate last year, the same symptoms as my right foot. Do you

think I still have CMT?

The muscle biopsy doesn't shown that much of CMT, is that correct? Any tests

that will prove me 100% that you actually have the CMT? What about the

types(1,2,and etc).

And also I already took the EMT before and I couldn't recalled what was the

result because I wasn't pay attention much. I think it shown a little

abnormal and it wasn't bad at all. All I remembered was that the

doctor said that I needed a brace to wear for the rest of my life. So here I am

now with the AFO on my right foot.

AFO is not successful for me but I found the great brace system called Helio

braces that I am still interesting in. I am currently in touch with Dr Warner

who invented the Helio braces since two weeks ago.

I wanted to thank you for the great CTMUS which I needed the most and very

informative emails from all of you who have CMT. I will definitely keep in

touch with you all if I have any questions.

Thanks again,

Zenaida Astone from Florida resident since 2001