My Introduction

[Guest guest]

Hi fellow members of ,

My name is Carl Capps, I'm 65, and a new resident in northeast Ohio. I came

here six months to get married for the second time after losing my first wife to

cancer three years ago. I have adult children, a son and daughter and seven

grandchildren, including 3 step grandchildren. Also, two step daughters. I'm a

ham radio operator, a hobby that I love.

After limping and falling for a number of years, my late wife strongly <grin>

suggested that I see a doctor about my problem. So about six years ago, I was

diagnosed with CMT. My doctor suspected my wife was feeding me arsenic. She

replied to that comment that I was worth more alive than dead. The doctor said

CMT wouldn't kill me but might disable me at some point in the future. My new

wife brags that I don't complain alot. I have AFOs but usually don't wear them

I do use a cane.

A doctor at Duke in N. C. where I moved from diagnosed me with CIDP. After

moving to Ohio six months ago, I went to one of the top neurologists in the

country at University Hospitals of Cleveland, where after DNA tests and a spinal

tap (ouch), I was diagnosed with CMT 2.

I am working out three days a week now using a stationary bike for aerobics and

strength training machines to try and strengthen my muscles. I use 1800 mg. of

neurontin per day and still have some burning at night several times a week. My

biggest problem is fatigue in the afternoon. Usually after a nap, I feel much

stronger and much better.

I am extremely happy to find this web site thanks to GG who responded to a post

on the Neuropathy Association web site. I'm quite impressed with the

website and plan to spend some time on it over the next few weeks and learn as

much as I can about the disease that challenges all of us afflicted.

I encourage everyone to hang in there and hope everyone has a great New Year!

Carl