Re: only one in the family and shoes for AFOs.

[Guest guest]

I too, am the only one in my family to have CMT. I was diagnosed in the early

70's and

throughout the 70's, 80's, and 90's I was told that if I had children my son

would have a

50% of having CMT, and a daughter would have a 100% chance. I'm sure much of

this was

guesswork, as doctors also told me that by age 20 I'd be in a wheelchair and I

proved

them wrong there.

In 2002 I had blood work done by Athena Labs through the CMT Clinic at Wayne

State

University in Detroit, but they couldn't determine what type of CMT I have.

No one in my family shows any symptoms, and I decided years ago after much

deliberation not to have children. It's a decision that has worked for me, but

it's still

difficult from time to time.

On a different note, someone new asked about good shoes for AFOs and I still

find

wrestling shoes to work the best for me with my current pair of AFOs that don't

allow me

to wear a shoe with ANY heel whatsoever. I have small feet and find that I can

easily shop

in the boys department and boys wrestling shoes provide great traction and look

sort of

cool too. :-)

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