Re: kid's with CMT having surgery

January 6, 2005

.

These are words to live by. " If it's not broken then don't fix it " . It doesn't

sound like you would need to even consider surgery at this point. Take it day by

day, year by year. Nothing needs to be done now, your boys seem to be doing fine

with CMT.

January 6, 2005

Thank you for the welcome! Right now my oldest son is in AFOs. And is getting

along great with them now that we have gotten them adjusted. There has been no

talk about surgery as of yet..we are waiting for the genetic DNA testing so they

can tell us exactly which category of CMT he has and his younger brother. Right

now they tell me Josh (our 6 yr old) that there is really nothing to do for him

at this point. So I have a list of a million questions to ask at our next

appointment. I think I was still in shell shock and all the questions came to

me on the drive home!

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